Summer has definitely been a crazy and busy journey!
Jared is doing awesome!
He has been working on summer packets to catch up on missing credits. Some of the work has been easy and others have been a real challenge. We are taking it slow and doing what we can.
He has graduated from occupational therapy. He still has tremors in his right hand but he has great strength in it. He is still seeing a therapist for his memory, which continues to improve, and also for his higher level thinking.
Jared is not as impulsive as he was before.
His left foot tires easily and aches a lot. But, that will continue to improve with time.
Jared attended our Stake Youth Trek the first week of June, what a great experience for him to participate in. He only lasted two days, but they were the HARDEST days. The first day they hiked up a steep incline for eight miles and they climbed 3500 feet. The second day he hiked 5 miles. It was so steep that it took the group four hours to go one mile! Insane!
We are proud of Jared for doing his best!
Jared has started a job....he is a busboy at a Mexican restaurant near our home...Peppers Cantina. We LOVE Peppers, Jared walked in late one night to pick up our dinner, he told the owner he should hire him to clean up! Job was Jared's! He works Monday thru Wednesday 11-2.
Jared just completed his Neruo-psychological testing to see what his deficits are. We had our meeting with the Neuropsychologist on Monday to get the results. Once again, we can see the miracles that our Heavenly Father continues to give to us, our hearts are continually grateful to Him. Jared, pre-injury, had an IQ of 114 - Superior. Now he is ranging in the low 100's - Average. However, the doctor told him he will get ALL of that back. He also said that considering everything that happened Jared is a miracle, he shouldn't be where he is today on the testing scales. Have we heard this before? Yes, many, many times.
If Jared isn't busy with school work, work or therapies he is a Fish, constantly swimming!
We hope everyone is enjoying their summer and all is well with everyone!
Sending our love to all!
Jared has started a
Tuesday, July 19, 2011
Sunday, May 8, 2011
Mothers Day
Happy Mothers Day to all of you! This is a wonderful mothers day...Jared bought me a gift on his own, with his own money and the best part is he REMEMBERED what I asked for, I told him what I wanted over a week ago!!!!
I had my other kids down here for the weekend and it was fun to have my family around.
Jared has a new cast, this time, if he keeps it on until Tuesday, he only has to do occupational therapy one time next week. Then if he waits another week, they will take it off and he will be done with occupational therapy. He will still have some limited use and tremors for a while, but that is something that will take time to heal, we have plenty of time. We continue to count our blessings and thank Heavenly Father for all he does for us.
I received a text from Emily, Bella's mother, and she let me know that Bella has received most of her sight and she can eat on her own, what a great mother's day present for her. Bella was the two year old baby that was at PCH.
Happy Mothers Day, give your kids an extra hug tonight!
I had my other kids down here for the weekend and it was fun to have my family around.
Jared has a new cast, this time, if he keeps it on until Tuesday, he only has to do occupational therapy one time next week. Then if he waits another week, they will take it off and he will be done with occupational therapy. He will still have some limited use and tremors for a while, but that is something that will take time to heal, we have plenty of time. We continue to count our blessings and thank Heavenly Father for all he does for us.
I received a text from Emily, Bella's mother, and she let me know that Bella has received most of her sight and she can eat on her own, what a great mother's day present for her. Bella was the two year old baby that was at PCH.
Happy Mothers Day, give your kids an extra hug tonight!
Tuesday, May 3, 2011
Jared's Secret...
So Jared followed through with his secret....the one to help get his right hand working faster...A CAST! Yes he had the OT put a RED cast on his good arm. Well, following through was one thing, however, it didn't last long. The cast was put on Friday at 2:00 pm. Jared had me take hiM to his dad's work so he could show him, and tell him that he broke his wrist in therapy! I couldn't even go in the office with Jared because I am terrible at lying, or as Jared was trying to claim, it's not a lie it's a sin of omission.
I thought Jared was in bed at 10:30 Friday night, when I went in to check on him, he had a butter knife trying to cut off the cast. Yes, he only made it eight hours! I chased him to bed with a slight scolding, hello, a butter knife! So the next morning I went in to his room and what did I find....another butter knife, a flashlight, lots of little pieces of cast and a bloody towel. Jared nicked his stomach several times while cutting off the cast! Arrrgghhh! Lee finished the job for Jared, no more cast!
Always an adventure - sometimes funny, sometimes frustrating, everyday a new journey!
I thought Jared was in bed at 10:30 Friday night, when I went in to check on him, he had a butter knife trying to cut off the cast. Yes, he only made it eight hours! I chased him to bed with a slight scolding, hello, a butter knife! So the next morning I went in to his room and what did I find....another butter knife, a flashlight, lots of little pieces of cast and a bloody towel. Jared nicked his stomach several times while cutting off the cast! Arrrgghhh! Lee finished the job for Jared, no more cast!
Always an adventure - sometimes funny, sometimes frustrating, everyday a new journey!
Wednesday, April 27, 2011
Weekly adventures
Last Wednesday I let Jared go on a hike up a waterfall. Yes you read that right! He went with his new scout group, only after mom lectured the leader about his injury. All went well.
While Jared was explaining about his injury to his new scout leader, Brother Barben stopped him and said "That was you, I was one of the fireman that responded to the 911 call, I can't wait to tell the other guys at the station how well you are doing, we have all been concerned." What a small world.
Moved on the weekend. Great physical therapy for Jared.
Jared got out of the car today on a busy road and just started crossing before looking, AHHHHH! I don't know who yelled at him more, me or Jason! Oh, and yes there were cars coming pretty close, we couldn't even get to him before the cars were right there.
He has run away from us twice this week. First time I was in tears searching Tooele for him. Second time Jason followed him in Saint George and eventually brought him back! TBI!
The boys were swimming in the back yard and Jared decided to run, ugh, yes he slipped and fell, more heart failures for Jason and I! Luckily he didn't hit his head, close, he almost fell into a cement bench! I'm starting to think he has an overworked angel guarding him! Thank you dear angel!
Monday was Jared's last day of physical therapy!
Jared is so excited to be done with physical therapy that he tried to convince his occupational therapist that he should be done. No cigar! Jared has decided he wants his hand to heal quicker and get back to normal, so he and his therapist have come up with a plan....let you know Friday! It's a secret until then, IF Jared follows through with his own plan.
While Jared was explaining about his injury to his new scout leader, Brother Barben stopped him and said "That was you, I was one of the fireman that responded to the 911 call, I can't wait to tell the other guys at the station how well you are doing, we have all been concerned." What a small world.
Moved on the weekend. Great physical therapy for Jared.
Jared got out of the car today on a busy road and just started crossing before looking, AHHHHH! I don't know who yelled at him more, me or Jason! Oh, and yes there were cars coming pretty close, we couldn't even get to him before the cars were right there.
He has run away from us twice this week. First time I was in tears searching Tooele for him. Second time Jason followed him in Saint George and eventually brought him back! TBI!
The boys were swimming in the back yard and Jared decided to run, ugh, yes he slipped and fell, more heart failures for Jason and I! Luckily he didn't hit his head, close, he almost fell into a cement bench! I'm starting to think he has an overworked angel guarding him! Thank you dear angel!
Monday was Jared's last day of physical therapy!
Jared is so excited to be done with physical therapy that he tried to convince his occupational therapist that he should be done. No cigar! Jared has decided he wants his hand to heal quicker and get back to normal, so he and his therapist have come up with a plan....let you know Friday! It's a secret until then, IF Jared follows through with his own plan.
Sunday, April 17, 2011
Update - April
I can't believe we've only been home a month. It seems like forever.
Changes in our lives...we are finally moved into our new house...at least for the next eighteen months. Lee's boss, Jim, and his wife Mary, left for their mission on Monday, and we are going to take care of their home while they are serving in the British West Indies (Trinidad and Tobago).
Living with Jared has become extremely interesting, there is never a dull moment around here, or at the store, or at the theaters, or at a restaurant...
Jared is different in so many ways. He smiles more, he laughs more and is always trying to make us laugh. We love these changes, but, sometimes he can be quite embarrassing. Last night we were all craving Chinese food, so we went out to dinner and the whole time Jared was pulling faces. Like I said before, he reminds me of a four year old in many ways. Going shopping is always interesting too, he likes to stop and play with toys, touch everything, and run his hand across the shelves as we walk by...no touchy, I have to remind him.
I think last time I posted I mentioned that we were sleeping in and doing nothing, well last week I decided it was time to get back to normal, whatever that may be for the moment. So we officially went to school four days! Jared goes to math everyday and then to Seminary and math every other day. He thought he could add one more class, so he tried to add foods on Friday, but I received a text from him to "come pick me up" after only going to two classes. I ran to the school expecting tears, but instead he jumped into the car and started to laugh hysterically telling me to hurry and drive. What? Are you okay? "Yes, just drive fast". As I pulled away he was still laughing and said "I just don't want to be here.". I guess laughter beats tears any day.
Jared is going to three sets of therapy twice a week. He should only need physical for another couple of weeks. He looks good physically, but he still has some short term memory challenges and his right hand still has tremors. He is having a hard time writing and grasping. We have spills everyday and sometimes more than one. Spills clean up, things can be repaired and replaced....Jared trying - absolutely priceless!
I was talking to Lee last night and I asked him if he thought Jared was getting better or getting worse, he told me no, he's just at a standstill for the moment, and then he reminded me, it's only been two and half months since the accident.
Take life one day at a time and appreciate what you have!
Changes in our lives...we are finally moved into our new house...at least for the next eighteen months. Lee's boss, Jim, and his wife Mary, left for their mission on Monday, and we are going to take care of their home while they are serving in the British West Indies (Trinidad and Tobago).
Living with Jared has become extremely interesting, there is never a dull moment around here, or at the store, or at the theaters, or at a restaurant...
Jared is different in so many ways. He smiles more, he laughs more and is always trying to make us laugh. We love these changes, but, sometimes he can be quite embarrassing. Last night we were all craving Chinese food, so we went out to dinner and the whole time Jared was pulling faces. Like I said before, he reminds me of a four year old in many ways. Going shopping is always interesting too, he likes to stop and play with toys, touch everything, and run his hand across the shelves as we walk by...no touchy, I have to remind him.
I think last time I posted I mentioned that we were sleeping in and doing nothing, well last week I decided it was time to get back to normal, whatever that may be for the moment. So we officially went to school four days! Jared goes to math everyday and then to Seminary and math every other day. He thought he could add one more class, so he tried to add foods on Friday, but I received a text from him to "come pick me up" after only going to two classes. I ran to the school expecting tears, but instead he jumped into the car and started to laugh hysterically telling me to hurry and drive. What? Are you okay? "Yes, just drive fast". As I pulled away he was still laughing and said "I just don't want to be here.". I guess laughter beats tears any day.
Jared is going to three sets of therapy twice a week. He should only need physical for another couple of weeks. He looks good physically, but he still has some short term memory challenges and his right hand still has tremors. He is having a hard time writing and grasping. We have spills everyday and sometimes more than one. Spills clean up, things can be repaired and replaced....Jared trying - absolutely priceless!
I was talking to Lee last night and I asked him if he thought Jared was getting better or getting worse, he told me no, he's just at a standstill for the moment, and then he reminded me, it's only been two and half months since the accident.
Take life one day at a time and appreciate what you have!
Jared
Hey Everybody it's j to the rad. I'm workin on becoming a stand up comedian do not laugh that was not a joke lol. Fun fact for you it's good for your body to laugh everyday it also helps build up your abs. Cool huh.
Monday, March 28, 2011
March 28th
Happy 15th Birthday to Jared and 17th for Jason!
I think this has to be THE best birthday! So grateful to have Jared here and doing so well! HE is an amazing teen!
Jared is making great progress everyday, yesterday he used his right hand to write some thank you cards! Nice job Jared!
I think this has to be THE best birthday! So grateful to have Jared here and doing so well! HE is an amazing teen!
Jared is making great progress everyday, yesterday he used his right hand to write some thank you cards! Nice job Jared!
Thursday, March 24, 2011
March 24th
We went to the first speech therapy, Breanna feels we should do therapy at least two times a week for the next three months. Tuesday we go to our first occupational therapy. Jared doesn't use his right hand like he should be, he claims it is broken and that he is left handed. With therapies running two-three times a week for three hours, they don't want him going to school for awhile. However, they decided that if he takes one "fun" class on the days we don't have therapy, it may be okay.
We went to the school and talked to the vice-principal and enrolled Jared into a foods class. Hmmm.....I may rethink that one, Jared is not able to use knives, and he has a problem with impulsivity still...that could be hazardous!
After much begging by Jared and his friends, I allowed Jared to stay at the school for an hour to attend an assembly. Only, after explaining all the hazards, precautions and help Jared would need. Several girls were more than willing to circle around him and create a barrier so he wouldn't be knocked down. That was a little scary for me to let him go, but I survived.
I think Jared would also benefit by going to seminary a couple of mornings, so I think that is what we will try to set up next week.
It's been a little difficult for me to get back into the swing of real life again. I like to sleep in late with Jared and then it takes us all day to do nothing. But, that is all about to change with therapies starting. We go tomorrow at eight am, yikes!
Jared loved being back to school and showing off his scar! He is pretty proud of it, he says he wants to keep his hair short so everyone will be able to see his battle wound. He's still funny!
We went to the school and talked to the vice-principal and enrolled Jared into a foods class. Hmmm.....I may rethink that one, Jared is not able to use knives, and he has a problem with impulsivity still...that could be hazardous!
After much begging by Jared and his friends, I allowed Jared to stay at the school for an hour to attend an assembly. Only, after explaining all the hazards, precautions and help Jared would need. Several girls were more than willing to circle around him and create a barrier so he wouldn't be knocked down. That was a little scary for me to let him go, but I survived.
I think Jared would also benefit by going to seminary a couple of mornings, so I think that is what we will try to set up next week.
It's been a little difficult for me to get back into the swing of real life again. I like to sleep in late with Jared and then it takes us all day to do nothing. But, that is all about to change with therapies starting. We go tomorrow at eight am, yikes!
Jared loved being back to school and showing off his scar! He is pretty proud of it, he says he wants to keep his hair short so everyone will be able to see his battle wound. He's still funny!
Tuesday, March 22, 2011
Miracles - March 22nd
After receiving phone calls and texts asking how we are, I decided I should probably update...
Jared is doing AmaZiNG! He got his fifty stitches out yesterday and then we went for a haircut. Now his hair matches all around. He's looking pretty slick!
Tomorrow we go to our first Speech Therapy. Wish us luck! We should find out when he can go back to school, IF his mom allows him too!! He actually asked me today if he could go tomorrow with the comment, "Mom, take advantage, because how often will I ask to go to school."
Things have been pretty quiet, although I have learned that going grocery shopping is too much for Jared and me...I feel like I'm shopping with a four year old. After a small tantrum in the store today, we came home and we both took a two hour nap.
I am amazed at how the pieces of this miracle puzzle continue to roll in...my friend Jessica stopped by on her way through town on Monday night. Talking with her, she reminded me how I mentioned before, that our move to St George was going to be a rescue for Jared. Perhaps, more than we will ever know!
I received a phone call today from the helicopter pilot checking on Jared. She mentioned that she was talking with one of the emergency room nurses and he said he fully expected Jared to hemorrhage out before they could land in Vegas. When he heard that Jared was walking and doing great he was surprised.
She then told me how St George has only had a fixed wing until January 18th, just thirteen days before Jared's accident. To help you understand what that means...TIME, time Jared did not have. If they were still using fixed wing Jared would have had to be transported by ambulance to the airport and then flown to the Vegas airport and then take another ambulance to the hospital. This is precious time that he didn't have. I am so grateful that they had a helicopter. The pilot told me that the other reason why she called was to see if we could be their WOW Story. The community of St George helped to fund the purchase of the helicopter, and they want to do a story about Jared. A while after I hung up from the pilot, I realized how important that piece of the puzzle was, to have a helicopter ready to leave immediately. Miracles continue...Miracles are all around! It's been a little bit of an emotional day recognizing everything that has happened. I know that our Heavenly Father had all of the pieces lined out and ready for Jared's rescue.
Jared is doing AmaZiNG! He got his fifty stitches out yesterday and then we went for a haircut. Now his hair matches all around. He's looking pretty slick!
Tomorrow we go to our first Speech Therapy. Wish us luck! We should find out when he can go back to school, IF his mom allows him too!! He actually asked me today if he could go tomorrow with the comment, "Mom, take advantage, because how often will I ask to go to school."
Things have been pretty quiet, although I have learned that going grocery shopping is too much for Jared and me...I feel like I'm shopping with a four year old. After a small tantrum in the store today, we came home and we both took a two hour nap.
I am amazed at how the pieces of this miracle puzzle continue to roll in...my friend Jessica stopped by on her way through town on Monday night. Talking with her, she reminded me how I mentioned before, that our move to St George was going to be a rescue for Jared. Perhaps, more than we will ever know!
I received a phone call today from the helicopter pilot checking on Jared. She mentioned that she was talking with one of the emergency room nurses and he said he fully expected Jared to hemorrhage out before they could land in Vegas. When he heard that Jared was walking and doing great he was surprised.
She then told me how St George has only had a fixed wing until January 18th, just thirteen days before Jared's accident. To help you understand what that means...TIME, time Jared did not have. If they were still using fixed wing Jared would have had to be transported by ambulance to the airport and then flown to the Vegas airport and then take another ambulance to the hospital. This is precious time that he didn't have. I am so grateful that they had a helicopter. The pilot told me that the other reason why she called was to see if we could be their WOW Story. The community of St George helped to fund the purchase of the helicopter, and they want to do a story about Jared. A while after I hung up from the pilot, I realized how important that piece of the puzzle was, to have a helicopter ready to leave immediately. Miracles continue...Miracles are all around! It's been a little bit of an emotional day recognizing everything that has happened. I know that our Heavenly Father had all of the pieces lined out and ready for Jared's rescue.
Thursday, March 17, 2011
March 17th
We made it to St George on Tuesday...it is good to be back home! The young women's group put up cut out balloons and posters all over our door to welcome Jared home...it was awesome!
It was strange letting Jared sleep in his own room, it was like having a newborn again...I don't know how many times I got up to check on him, but he did just fine.
Last night the youth group came over to see Jared. We are lucky to be living in a wonderful ward. I will miss it dearly. We will be moving to a home in a month, I will miss the friends I have made here.
The swelling in Jared's face has almost gone away...almost. He is doing well and his memories of St George are returning. Some of his friends have stopped by see him.
Thank you for your continued prayers. Jared begins out-patient therapy next week, then we can find out when he can go back to school and for how long. He still gets tired in the afternoon, but overall he is doing better.
HappY St. PatRiCks DaY!
It was strange letting Jared sleep in his own room, it was like having a newborn again...I don't know how many times I got up to check on him, but he did just fine.
Last night the youth group came over to see Jared. We are lucky to be living in a wonderful ward. I will miss it dearly. We will be moving to a home in a month, I will miss the friends I have made here.
The swelling in Jared's face has almost gone away...almost. He is doing well and his memories of St George are returning. Some of his friends have stopped by see him.
Thank you for your continued prayers. Jared begins out-patient therapy next week, then we can find out when he can go back to school and for how long. He still gets tired in the afternoon, but overall he is doing better.
HappY St. PatRiCks DaY!
Sunday, March 13, 2011
March 13th
Jared has been running a fever all day and his poor face is swollen. I ended up taking Jared back to the hospital at four this morning because of his fever. It was weird I was dreaming that he was running a fever of a 101.5, when I woke up I took his temp and that's exactly what it was. I took him in and spent three hours there, he is okay now. I just gave him some lortab, the first one since seven last night, and he is loopy!!! He is finally feeling better from the fever.
I cooked dinner tonight for the first time in six weeks! We had our traditional "fun" St. Patty's day dinner! Enjoyed some family.
He is so funny right now...
I cooked dinner tonight for the first time in six weeks! We had our traditional "fun" St. Patty's day dinner! Enjoyed some family.
He is so funny right now...
Saturday, March 12, 2011
March 12th
Back in Tooele until Tuesday.
We were released from the hospital at 11 this morning. I wasn't expecting to get out until late afternoon. Jared did so well, he was released early.
Jared only needed morphine for the first two hours after surgery. Then he only used lortab twice in the next fifteen hours. He hasn't used anything since nine this morning! He says he feels great. Jared had to have a drain line pulled from his scalp and a CAT scan, everything went smooth and he looks awesome, even though he has only half of his head shaved. You would think they would shave it all, considering how much they charge for surgery!
When the doctor told him we could leave he stood up and did a little dance in the hallway. We went and spent some more time with our little friend Bella before we left. We are so excited, she started walking on her own yesterday, she is amazing! We wish her continued success!
We were released from the hospital at 11 this morning. I wasn't expecting to get out until late afternoon. Jared did so well, he was released early.
Jared only needed morphine for the first two hours after surgery. Then he only used lortab twice in the next fifteen hours. He hasn't used anything since nine this morning! He says he feels great. Jared had to have a drain line pulled from his scalp and a CAT scan, everything went smooth and he looks awesome, even though he has only half of his head shaved. You would think they would shave it all, considering how much they charge for surgery!
When the doctor told him we could leave he stood up and did a little dance in the hallway. We went and spent some more time with our little friend Bella before we left. We are so excited, she started walking on her own yesterday, she is amazing! We wish her continued success!
Friday, March 11, 2011
Surgery Success
Surgery was successful, all is well. No extra blood was needed and things looked really good. Dr. Riva-Cambrin said they will send Jared to a regular room instead of PICU. Jared will have another CAT scan tomorrow and if everything looks good, we can go home-to Tooele. Yes, we have to stay another couple of days in Tooele for safety precautions.
We will go home Tuesday or Wednesday. As much as I love Tooele and still call it home, HOME is where Lee is.
We will go home Tuesday or Wednesday. As much as I love Tooele and still call it home, HOME is where Lee is.
In surgery
Jared was taken into surgery a few minutes ago. He was laughing himself silly!!!! Yes, they pre-drugged him...thank heavens for good medicine. Jared asked the anesthesiologist if he would wake up, his response was "what are you going to do if I let you wake up", that is what sent Jared into major giggles.
As I was in the family surgical waiting room, a man came in yelling "I need to find my granddaughter they said she died." As the nurses tried to calm him, he became extremely irate yelling louder and pounding on the counter. Security was called and he was tackled and is being held by the police. Scary? A little, but I was more concerned that he is just so upset, now everyone in the waiting room is talking, loudly, about the incident and being extremely negative. How easy for people to judge, I feel really bad that he is now in custody and can't get to his family. After all, he is just frightened, and it flooded me with memories from the beginning of our journey. I finally left the waiting room for some quiet. One of the nurses asked if I was upset, of course I am, at how insensitive others can be. The police even brought in statements for people to fill out so they can keep him for as long as they can. I did not participate. I just pray for this stranger and hope he will find some peace and will be allowed to see his family.
As I was in the family surgical waiting room, a man came in yelling "I need to find my granddaughter they said she died." As the nurses tried to calm him, he became extremely irate yelling louder and pounding on the counter. Security was called and he was tackled and is being held by the police. Scary? A little, but I was more concerned that he is just so upset, now everyone in the waiting room is talking, loudly, about the incident and being extremely negative. How easy for people to judge, I feel really bad that he is now in custody and can't get to his family. After all, he is just frightened, and it flooded me with memories from the beginning of our journey. I finally left the waiting room for some quiet. One of the nurses asked if I was upset, of course I am, at how insensitive others can be. The police even brought in statements for people to fill out so they can keep him for as long as they can. I did not participate. I just pray for this stranger and hope he will find some peace and will be allowed to see his family.
Surgery Day
Yay we made it to the hospital and so did the bone flap! I received a call from the hospital this morning, the anesthesiologist was looking for us, they thought we were still admitted in the hospital. When they found out we were gone they were quite concerned that we didn't know about the surgery. Glad someone called last night.
We arrived with Jared excited and happy to be getting his skull back...until we hit the elevators, then the anxiety kicked in, I felt so bad for him. He was begging me to let him go home. Jared's biggest concern is that he will wake up during surgery. After some consoling, he asked me to say a prayer for him while he said his own. After, he asked if he could get a blessing. We asked the nurse who located some elders in the hospital to come and give him a blessing. Again, I am grateful for the church and for the priesthood that worthy men can hold. One of the elders happened to be one of Jareds techs from our stay, that added some more comfort. Jared is doing well right now and his anxiety is gone.
Dr. Riva-Cambri is doing his surgery and they expect it to last about two and a half hours.
We arrived with Jared excited and happy to be getting his skull back...until we hit the elevators, then the anxiety kicked in, I felt so bad for him. He was begging me to let him go home. Jared's biggest concern is that he will wake up during surgery. After some consoling, he asked me to say a prayer for him while he said his own. After, he asked if he could get a blessing. We asked the nurse who located some elders in the hospital to come and give him a blessing. Again, I am grateful for the church and for the priesthood that worthy men can hold. One of the elders happened to be one of Jareds techs from our stay, that added some more comfort. Jared is doing well right now and his anxiety is gone.
Dr. Riva-Cambri is doing his surgery and they expect it to last about two and a half hours.
Thursday, March 10, 2011
March 10th
Wow, so I am learning how to have a LITTLE patience. We didn't get an answer about surgery until six thirty tonight!
The bone piece is SUPPOSED to be here by 8 am tomorrow morning (Friday), surgery is scheduled for 11:30. If his piece DOESN'T show up....I'll let you know what the new plans are, because I sure as heck don't know anything until it happens!
Wish us luck, AgAIn, and thanks for your continued prayers!
The bone piece is SUPPOSED to be here by 8 am tomorrow morning (Friday), surgery is scheduled for 11:30. If his piece DOESN'T show up....I'll let you know what the new plans are, because I sure as heck don't know anything until it happens!
Wish us luck, AgAIn, and thanks for your continued prayers!
Going away party at PCH
I never shared about the going away party that was held on Tuesday.
Jared made his favorite dessert, Pumpkin Cheesecake. He was so excited to share the recipe with everybody, which I will share at the bottom of this post.
Jen, one of our favorite nurses, went to ask Abby, another little girl at the unit, when she would like to have her party (she was scheduled to leave later this week). She told Jen she wanted hers with Jared. She is so cute. Jared chose to give Abby the doll that the Yorks brought in on Friday. She loved it, thanks York Family!
It was a great party, they had a couple of kids that Jared knew from the unit come in and then some techs and nurses joined us. Jared was so cute he was handing out the cheesecake and he made sure everyone was served. At least he still has his manners, other than burping in the lunchroom!
We both fell in love with another girl that is two years old, she is such a doll. Unfortunately her story is much sadder than Jareds, she was shaken by a man, not her dad, that harmed her so bad she is now blind among the other challenges that come with a traumatic brain injury. She loved talking with Jared and would come over to his room to say goodnight. I wish her parents both the best of luck and pray that they will be able to return home soon. Bella has a special place in our hearts! We already miss her. Her mother and I exchanged numbers so we could keep in touch. We hope we will be in town for Bella's going home party!
Jared is so cute with the little kids, I have loved watching him play with them and share in their joys and triumphs! Jared is a very gentle and loving teen!
Jared's Favorite Dessert ~ Pumpkin Cheesecake (Jared says to try it, even if you don't like pumpkin pie like him, you will LOVE this recipe.)
1 pre-made Graham Cracker Crust
1 tub of pre-made Philadelphia Cheesecake Mix (buy it in refrigerator section, by the cream cheese)
1 small can of Pumpkin (not pumpkin pie filling)
Mix cheesecake and pumpkin together, pour into pie shell and refrigerate for about an hour
YOU WILL LOVE IT, IT'S SOooo GOOD! - Jared
Jared made his favorite dessert, Pumpkin Cheesecake. He was so excited to share the recipe with everybody, which I will share at the bottom of this post.
Jen, one of our favorite nurses, went to ask Abby, another little girl at the unit, when she would like to have her party (she was scheduled to leave later this week). She told Jen she wanted hers with Jared. She is so cute. Jared chose to give Abby the doll that the Yorks brought in on Friday. She loved it, thanks York Family!
It was a great party, they had a couple of kids that Jared knew from the unit come in and then some techs and nurses joined us. Jared was so cute he was handing out the cheesecake and he made sure everyone was served. At least he still has his manners, other than burping in the lunchroom!
We both fell in love with another girl that is two years old, she is such a doll. Unfortunately her story is much sadder than Jareds, she was shaken by a man, not her dad, that harmed her so bad she is now blind among the other challenges that come with a traumatic brain injury. She loved talking with Jared and would come over to his room to say goodnight. I wish her parents both the best of luck and pray that they will be able to return home soon. Bella has a special place in our hearts! We already miss her. Her mother and I exchanged numbers so we could keep in touch. We hope we will be in town for Bella's going home party!
Jared is so cute with the little kids, I have loved watching him play with them and share in their joys and triumphs! Jared is a very gentle and loving teen!
Jared's Favorite Dessert ~ Pumpkin Cheesecake (Jared says to try it, even if you don't like pumpkin pie like him, you will LOVE this recipe.)
1 pre-made Graham Cracker Crust
1 tub of pre-made Philadelphia Cheesecake Mix (buy it in refrigerator section, by the cream cheese)
1 small can of Pumpkin (not pumpkin pie filling)
Mix cheesecake and pumpkin together, pour into pie shell and refrigerate for about an hour
YOU WILL LOVE IT, IT'S SOooo GOOD! - Jared
Wednesday, March 9, 2011
March 9th
Yes we are in Tooele, we were discharged until Friday.
Dr. Such-Neibar, who has been Jared's primary doctor, felt that his anti-depressant meds were the problem. We are weaning him off, tonight is the last dose, let's hope this was the problem and the agitation will go away soon. He does seem to be better today.
So a funny from yesterday: When Jared heard that the hospital hadn't located his skull piece yet, he put his helmet on and started walking down the hall, when asked by a tech where he was going he replied, "to hire a lawyer, I'm going to sue them for losing it, how hard is it to attach a tag with my name and file it in the freezer."
Yesterday when I arrived in town Jared was upset that I wouldn't let him go hang out with his friends, so he tried to run down the street. Aarrgghh, try reasoning with a teenager that is throwing a temper tantrum like a four year old (I know that's typical) but I couldn't pick him up and put him in the car, I'm sure it was quite a scene for the neighbors...ha ha!
But, we both did some yelling and crying and got it all together! I think he finally realizes he has to be cautious! Had a great night sleep, Jared slept for about twelve hours. I am having him sleep on a mattress on the floor, I'm worried about him falling off the bed.
We went shopping today and saw Sister Barton, what a treat for her and us to spend some time together. She is such a wonderful lady, we love her very much. Her comments to Jared helped me to stop and refocus on what a miracle he is...I am grateful for her words!
Tomorrow I am going to treat myself to some me time, going for a pedi!
Dr. Such-Neibar, who has been Jared's primary doctor, felt that his anti-depressant meds were the problem. We are weaning him off, tonight is the last dose, let's hope this was the problem and the agitation will go away soon. He does seem to be better today.
So a funny from yesterday: When Jared heard that the hospital hadn't located his skull piece yet, he put his helmet on and started walking down the hall, when asked by a tech where he was going he replied, "to hire a lawyer, I'm going to sue them for losing it, how hard is it to attach a tag with my name and file it in the freezer."
Yesterday when I arrived in town Jared was upset that I wouldn't let him go hang out with his friends, so he tried to run down the street. Aarrgghh, try reasoning with a teenager that is throwing a temper tantrum like a four year old (I know that's typical) but I couldn't pick him up and put him in the car, I'm sure it was quite a scene for the neighbors...ha ha!
But, we both did some yelling and crying and got it all together! I think he finally realizes he has to be cautious! Had a great night sleep, Jared slept for about twelve hours. I am having him sleep on a mattress on the floor, I'm worried about him falling off the bed.
We went shopping today and saw Sister Barton, what a treat for her and us to spend some time together. She is such a wonderful lady, we love her very much. Her comments to Jared helped me to stop and refocus on what a miracle he is...I am grateful for her words!
Tomorrow I am going to treat myself to some me time, going for a pedi!
Tuesday, March 8, 2011
Changes - Never Ending Changes
Yes, we are headed to Tooele this afternoon!
Plans are for surgery Friday, BUT they still can't find his bone flap. It's not lost, they just can't find it....What! If it is not here by tomorrow surgery will be postponed until the 17th. UGH!
I still haven't found my patience! Does anyone have some I can borrow?
Plans are for surgery Friday, BUT they still can't find his bone flap. It's not lost, they just can't find it....What! If it is not here by tomorrow surgery will be postponed until the 17th. UGH!
I still haven't found my patience! Does anyone have some I can borrow?
Monday, March 7, 2011
Changes
In a world full of change, ours changes again...we are NOT getting out of here tomorrow.
Jared has been out of control and refuses to do therapy. The attending doctor came in and recognized there is a problem, finally someone sees what I have been struggling with the last few days. They are going to change his meds and keep us here for the rest of the week. This is frustrating but yet it is a relief in some ways. I am not prepared to deal with the behavioral changes that Jared is struggling with, besides a brain injury, he is a teenager! NOT a good combination.
I hope that the new meds will help even Jared out. Another part of the problem is Jared recognizes that he has learning problems but he won't acknowledge that there IS a problem.
I have had my own epiphany....this will come as a shock to others, beacuase i can be just a bit of a CF - I CAN'T DO EVERYTHING! Now I just need to learn how and when to ask for help.
Changes!
Jared has been out of control and refuses to do therapy. The attending doctor came in and recognized there is a problem, finally someone sees what I have been struggling with the last few days. They are going to change his meds and keep us here for the rest of the week. This is frustrating but yet it is a relief in some ways. I am not prepared to deal with the behavioral changes that Jared is struggling with, besides a brain injury, he is a teenager! NOT a good combination.
I hope that the new meds will help even Jared out. Another part of the problem is Jared recognizes that he has learning problems but he won't acknowledge that there IS a problem.
I have had my own epiphany....this will come as a shock to others, beacuase i can be just a bit of a CF - I CAN'T DO EVERYTHING! Now I just need to learn how and when to ask for help.
Changes!
Sunday, March 6, 2011
March 6th
We busted out of this place for nine hours....
Went to Tooele and enjoyed time with family, went to church had dinner with Grandpa Ed and Grandma Margene.
I think the last two days have been a little tiring for Jared. He took a nap from three to five. He is now ready for bed and it's only eight o'clock!
We weighed Jared when we came back to the hospital, he is now up to 114 lbs.
We only have two more days of therapy (in the hospital) hooray!
I am grateful for the opportunity I had to go to sacrament meeting in my old ward in Tooele. The fourteenth ward has a special place in my heart and always will. I want to give a shout out to the ward, I have so many friends and loved ones there. I consider all of you a part of my family, thank you again for your testimonies and prayers. I am truly blessed. I had time to reflect this morning about my drive to Vegas, one of the things that kept my mind occupied was counting my blessings, no matter what was to happen, I am truly blessed. I am grateful for the priesthood, for father's blessings and for the sacrifices that the Prophet Joseph Smith made so that our church could be restored.
Count your blessings!
Went to Tooele and enjoyed time with family, went to church had dinner with Grandpa Ed and Grandma Margene.
I think the last two days have been a little tiring for Jared. He took a nap from three to five. He is now ready for bed and it's only eight o'clock!
We weighed Jared when we came back to the hospital, he is now up to 114 lbs.
We only have two more days of therapy (in the hospital) hooray!
I am grateful for the opportunity I had to go to sacrament meeting in my old ward in Tooele. The fourteenth ward has a special place in my heart and always will. I want to give a shout out to the ward, I have so many friends and loved ones there. I consider all of you a part of my family, thank you again for your testimonies and prayers. I am truly blessed. I had time to reflect this morning about my drive to Vegas, one of the things that kept my mind occupied was counting my blessings, no matter what was to happen, I am truly blessed. I am grateful for the priesthood, for father's blessings and for the sacrifices that the Prophet Joseph Smith made so that our church could be restored.
Count your blessings!
Saturday, March 5, 2011
March 5th
Today was awesome!
Jared had three straight hours of therapy is morning. At one point it became too much, so we had to take a break for a few minutes. I was able to help refocus Jared and he finished the session strong.
We were allowed to leave the hospital around eleven and didn't have to return until six o clock. YEAH! Spent the day in Tooele with family, then went to Salt Lake to a reception and then had dinner with Kayla and Justin. Great day! Can't wait until tomorrow. Hope to see many more.
If you would like to visit us in Tooele tomorrow, give us a call. We will be available from noon until two. We will also be back in Tooele Tuesday, Wednesday and Thursday. Give us a shout and come visit. Please remember if your sick, just give us a call. We have to keep Jared healthy for his surgery. Thanks!
St. George, we will be home Saturday (fingers crossed)!
Jared had three straight hours of therapy is morning. At one point it became too much, so we had to take a break for a few minutes. I was able to help refocus Jared and he finished the session strong.
We were allowed to leave the hospital around eleven and didn't have to return until six o clock. YEAH! Spent the day in Tooele with family, then went to Salt Lake to a reception and then had dinner with Kayla and Justin. Great day! Can't wait until tomorrow. Hope to see many more.
If you would like to visit us in Tooele tomorrow, give us a call. We will be available from noon until two. We will also be back in Tooele Tuesday, Wednesday and Thursday. Give us a shout and come visit. Please remember if your sick, just give us a call. We have to keep Jared healthy for his surgery. Thanks!
St. George, we will be home Saturday (fingers crossed)!
March 5th
Yesterday was pretty rough for mom! This reality check was pretty hard for me to deal with. If I have a hard time getting Jared up and ready for therapy in the hospital, HOW am I supposed to do it on my own when we go home? He is so difficult because he "thinks" he's all better. Aaarrrggghh.
I played the why game for about a minute, then I changed my question to what do I need to do and how do I do this. I don't have the answer yet, but I hope I find it soon. I do know that finding the answer begins with faith, prayer, PATIENCE, and hard work.
When you have a child with a brain injury the nurses are trained to talk with you and teach you about the injury and things to expect. Yesterday as I talked with Dave, I told him my concerns, all he told me was I needed to find my own balance. Not very helpful at the moment, but I better understand that this morning. How can someone tell you your balance? I will have to find my way.
Jared had a great day. He was frustrated that I would ditch him to go to dinner with Brandon, his fiancée and Jackson. I had a great time playing grandma with Jackson, he is sooo cute!
When I came back to the hospital, the York's were here visiting and keeping Jared entertained. Guess what, the York's bought Jared a UofU blanket, I'm sure that was painful (they are diehard Y fans). Brigid also brought Jared a doll with a homemade quilt, ahhhh. She brought it so Jared could give it to one of the little girls here on his floor.
After therapy this morning we are allowed to leave for about four hours. Yeah. not sure what we are doing yet. We will be going to a reception tonight for Brandon's friend. Jared is excited to be leaving this place. I have to say, I am too.
I played the why game for about a minute, then I changed my question to what do I need to do and how do I do this. I don't have the answer yet, but I hope I find it soon. I do know that finding the answer begins with faith, prayer, PATIENCE, and hard work.
When you have a child with a brain injury the nurses are trained to talk with you and teach you about the injury and things to expect. Yesterday as I talked with Dave, I told him my concerns, all he told me was I needed to find my own balance. Not very helpful at the moment, but I better understand that this morning. How can someone tell you your balance? I will have to find my way.
Jared had a great day. He was frustrated that I would ditch him to go to dinner with Brandon, his fiancée and Jackson. I had a great time playing grandma with Jackson, he is sooo cute!
When I came back to the hospital, the York's were here visiting and keeping Jared entertained. Guess what, the York's bought Jared a UofU blanket, I'm sure that was painful (they are diehard Y fans). Brigid also brought Jared a doll with a homemade quilt, ahhhh. She brought it so Jared could give it to one of the little girls here on his floor.
After therapy this morning we are allowed to leave for about four hours. Yeah. not sure what we are doing yet. We will be going to a reception tonight for Brandon's friend. Jared is excited to be leaving this place. I have to say, I am too.
Friday, March 4, 2011
Changes....again
The neuro-surgeon just came and gave us the new plan:
Release on Tuesday - 8th
Surgery Friday morning - 11th
Home Saturday!
This is all contingent on his bone piece being here on time. If it is not here in PCH's freezer by Tuesday his surgery will be cancelled until the 17th. Apparently, human bone is considered hazardous waste, so there is tons of paperwork to have it transferred, the FDA has to track the bone until it is replaced. Crazy!
We will be able to have visitors next week while we are in Tooele for three days. BUT, you cannot be sick! If Jared gets sick his surgery will be cancelled. We will let you know how and where to visit us later this week.
Changes, this is where I have no patience! Wish us luck today!
Release on Tuesday - 8th
Surgery Friday morning - 11th
Home Saturday!
This is all contingent on his bone piece being here on time. If it is not here in PCH's freezer by Tuesday his surgery will be cancelled until the 17th. Apparently, human bone is considered hazardous waste, so there is tons of paperwork to have it transferred, the FDA has to track the bone until it is replaced. Crazy!
We will be able to have visitors next week while we are in Tooele for three days. BUT, you cannot be sick! If Jared gets sick his surgery will be cancelled. We will let you know how and where to visit us later this week.
Changes, this is where I have no patience! Wish us luck today!
Thursday, March 3, 2011
March 3rd
Tough afternoon, major meltdown and a case of reality set in today.
Jared had a major meltdown this afternoon when his OT told him she was going to have his left arm put into a cast, because he doesn't want to use the weak arm. Yes, they will cast it.
He decided he would run away again, this time he made sure to put his helmet on and grabbed his wheelchair and tried to escape pushing the wheelchair down the hallway (all I could do was stand in the hallway and laugh, so I wouldn't cry). So of course the unit was put on lockdown! He was yelling at everyone!
Reality set in with me that this is still going to be a long road to recovery. When you see Jared, physically he looks awesome. We will still be working on memory and learning challenges. He will have to continue therapy on an outpatient basis, which takes priority over schooling. We don't know what kind of deficits he will have for a few more months.
Jared now weighs 111 lbs.
We are on the countdown to go home - 8 days!
Jared had a major meltdown this afternoon when his OT told him she was going to have his left arm put into a cast, because he doesn't want to use the weak arm. Yes, they will cast it.
He decided he would run away again, this time he made sure to put his helmet on and grabbed his wheelchair and tried to escape pushing the wheelchair down the hallway (all I could do was stand in the hallway and laugh, so I wouldn't cry). So of course the unit was put on lockdown! He was yelling at everyone!
Reality set in with me that this is still going to be a long road to recovery. When you see Jared, physically he looks awesome. We will still be working on memory and learning challenges. He will have to continue therapy on an outpatient basis, which takes priority over schooling. We don't know what kind of deficits he will have for a few more months.
Jared now weighs 111 lbs.
We are on the countdown to go home - 8 days!
Wednesday, March 2, 2011
March 2nd
Yesterday was another fantastic day! Jared did awesome in all of his therapies. He jogged on the treadmill and down the hallway, walked three flights of stairs to see the helipad and played tag with me in his wheelchair outside. His friend Marcus came to hang out and play xbox. We went to teen night upstairs and played UNO spin with two other adults. No teens, what's up with that?
We think we finally have things narrowed down...Jared will be making pumpkin cheesecake for a his release party on Tuesday. Wednesday is pre-op day. Thursday is surgery to replace the bone piece. Friday we are headed home to St. George! Yeah!
We will be in Tooele on Sunday, I am trying to "plan" a little friend time, so watch for the announcement to know when you can come and visit.
Today has been great for therapy but it is a very quiet day! The Hammonds from Tooele stopped by to visit and Jared's friend Hayden is here hanging out for the next three hours. Hayden brought his guitar to teach Jared how to play, music therapy brought up a guitar for Jared to practice with. I'm hoping he will like guitar and want to take lessons, it IS safer than boxing. Yes, he is still trying to convince me he needs boxing lessons!!! Like that will happen in this lifetime.
We think we finally have things narrowed down...Jared will be making pumpkin cheesecake for a his release party on Tuesday. Wednesday is pre-op day. Thursday is surgery to replace the bone piece. Friday we are headed home to St. George! Yeah!
We will be in Tooele on Sunday, I am trying to "plan" a little friend time, so watch for the announcement to know when you can come and visit.
Today has been great for therapy but it is a very quiet day! The Hammonds from Tooele stopped by to visit and Jared's friend Hayden is here hanging out for the next three hours. Hayden brought his guitar to teach Jared how to play, music therapy brought up a guitar for Jared to practice with. I'm hoping he will like guitar and want to take lessons, it IS safer than boxing. Yes, he is still trying to convince me he needs boxing lessons!!! Like that will happen in this lifetime.
Tuesday, March 1, 2011
March 1st
What a beautiful spring day! Jared and I went for a walk inside the building and he asked if we could go outside for some fresh air. We went up to the third floor where they have a large patio. As I pushed Jared's wheelchair outside he began breathing heavily, he said "I'm trying to get all the air I can before we have to go back inside." Great Strategy!
Jared was able to get dressed 100% by himself today, this included tying his shoes and doing up the button on his pants!!!
The Neurosurgeon just stopped by, he told us Jared is ready for his bone piece to be put back in...if they can locate it. He thinks he will do the surgery in two weeks, because he will be out of town next week. There is a small chance that he may put it back next Monday before he leaves town....
It will be inserted using dissolvable plates not glue...they do things different here than UMC in Vegas.
BTW...the young man that was in a coma next to Jared's room, is now breathing on his own and is beginning to wake up. We are so excited!!!
Yesterday a gentleman from St George stopped by to check on Jared. He is a high councilman that was asked by the Stake Presidency to stop by and check on us and to send their love. I love our church, these are men that we have never met before, but I know they truly care and love us. The high councilman is here because his four year old has cancer, please say a prayer for her, she will have surgery next Tuesday. Her name is Jessica.
Missing Lee today, can't wait to go home!
Today Jared has a friend coming to visit, he is so excited! He loves company.
Jared is such an inspiration to me. I can't imagine what it would be like if I were in his shoes, I don't think I would have the same strength.
Jared was able to get dressed 100% by himself today, this included tying his shoes and doing up the button on his pants!!!
The Neurosurgeon just stopped by, he told us Jared is ready for his bone piece to be put back in...if they can locate it. He thinks he will do the surgery in two weeks, because he will be out of town next week. There is a small chance that he may put it back next Monday before he leaves town....
It will be inserted using dissolvable plates not glue...they do things different here than UMC in Vegas.
BTW...the young man that was in a coma next to Jared's room, is now breathing on his own and is beginning to wake up. We are so excited!!!
Yesterday a gentleman from St George stopped by to check on Jared. He is a high councilman that was asked by the Stake Presidency to stop by and check on us and to send their love. I love our church, these are men that we have never met before, but I know they truly care and love us. The high councilman is here because his four year old has cancer, please say a prayer for her, she will have surgery next Tuesday. Her name is Jessica.
Missing Lee today, can't wait to go home!
Today Jared has a friend coming to visit, he is so excited! He loves company.
Jared is such an inspiration to me. I can't imagine what it would be like if I were in his shoes, I don't think I would have the same strength.
Monday, February 28, 2011
Oh yeah...
Jared walked across the balance beam in therapy by himself and stood on his right leg for eleven seconds and the left leg (the weak one) for six seconds. He wouldn't leave therapy until he could stand for ten seconds on his weak leg, he did it!
February 28th
Four weeks ago our lives changed! Hopefully, we come out better people because of this experience.
Today has been great, Jared had some frustrations last night and was really tired. He fell asleep around 8:30 and didn't wake up until 8:00 this morning.
When you have head injuries some days can become overwhelming and extremely tiring. Speech therapy seems to be the hardest, it causes the brain to work the most. I think speech therapy should have a name change - they do more than actual speech, they work on cognitive, memory and swallowing. Jared only has troubles with his memory, luckily!
Jared decided that he is ready to be sprung from the joint....so he told me he was going to knock down therapies so they will let him leave soon. He accomplished all of his goals plus more...Go JaReD!
Tomorrow we will be given a tentative release date...Jared definitely wants to be back to St. George by his birthday - March 28th.
We did have two mishaps - he slipped in the shower with the tech and he fell during physical therapy. He hurt his hip and got some rug burns but he is tough and doing alright.
Today has been great, Jared had some frustrations last night and was really tired. He fell asleep around 8:30 and didn't wake up until 8:00 this morning.
When you have head injuries some days can become overwhelming and extremely tiring. Speech therapy seems to be the hardest, it causes the brain to work the most. I think speech therapy should have a name change - they do more than actual speech, they work on cognitive, memory and swallowing. Jared only has troubles with his memory, luckily!
Jared decided that he is ready to be sprung from the joint....so he told me he was going to knock down therapies so they will let him leave soon. He accomplished all of his goals plus more...Go JaReD!
Tomorrow we will be given a tentative release date...Jared definitely wants to be back to St. George by his birthday - March 28th.
We did have two mishaps - he slipped in the shower with the tech and he fell during physical therapy. He hurt his hip and got some rug burns but he is tough and doing alright.
Sunday, February 27, 2011
February 27th
What a wonderful Sabbath Day.
Jared woke up this morning and told me "I feel really good today, like I'm alive!". How sweet. Lee brought Jason in to see Jared today and to watch him for us while we were away.
We all went to sacrament services here at PCH. After, Jared told me "Mom you need to leave right now and go to Tooele for the day, you have been here for three weeks, it's time to go." Wow, big improvement, usually I have a hard time sneaking away for two minutes.
Lee and I went to a mission farewell in Tooele, and had Lee meet Brandon's fiancé and little boy....Oh by the way, Brandon is getting married this summer to a sweet gal Sam and she has a beautiful little two year old boy Jackson. Yay I'm going to be a nana!!! He already asked for a kiss and said bye-bye Nana!
We had several visitors tonight, Grandpa Ed and Grandma Margene came in, one of Lee's mission companions stopped by and some close friends of ours, the Crossley's.
Thanks for your prayers and continued support and love.
Jared woke up this morning and told me "I feel really good today, like I'm alive!". How sweet. Lee brought Jason in to see Jared today and to watch him for us while we were away.
We all went to sacrament services here at PCH. After, Jared told me "Mom you need to leave right now and go to Tooele for the day, you have been here for three weeks, it's time to go." Wow, big improvement, usually I have a hard time sneaking away for two minutes.
Lee and I went to a mission farewell in Tooele, and had Lee meet Brandon's fiancé and little boy....Oh by the way, Brandon is getting married this summer to a sweet gal Sam and she has a beautiful little two year old boy Jackson. Yay I'm going to be a nana!!! He already asked for a kiss and said bye-bye Nana!
We had several visitors tonight, Grandpa Ed and Grandma Margene came in, one of Lee's mission companions stopped by and some close friends of ours, the Crossley's.
Thanks for your prayers and continued support and love.
Saturday, February 26, 2011
February 26th
Last night a nurse told me Jared was doing an amazing job. She was reading the notes in his file, and told me that his brain injury was considered "serious" and that she has never seen anyone progress this much so quickly. In fact she was surprised at how much he has changed since Tuesday.
Jared is AmazInG! (for effect,sing the word AMaZZiiinngg as you read it)
Jared did so well at therapy that he is allowed to have special visitors today and he can leave the hospital for a short outing on Sunday morning, as long as we are back by 10:30, to go to church he reminded me.
He is really beginning to understand how lucky he is and that his progress is because of all the prayers and fasting. He wants to stop by the other religions to tell them thank you personally. What a blessing this "character building experience" has become. This is part of his rescue.
{Wishing All a Happy Saturday}
Jared is AmazInG! (for effect,sing the word AMaZZiiinngg as you read it)
Jared did so well at therapy that he is allowed to have special visitors today and he can leave the hospital for a short outing on Sunday morning, as long as we are back by 10:30, to go to church he reminded me.
He is really beginning to understand how lucky he is and that his progress is because of all the prayers and fasting. He wants to stop by the other religions to tell them thank you personally. What a blessing this "character building experience" has become. This is part of his rescue.
{Wishing All a Happy Saturday}
Patience is a virtue
I think the lesson I am supposed to learn in this life is patience. I must be a terrible student, or just hard headed.
It's interesting because I have great patience in certain areas, like sitting in a hospital room, but put me on the highway and GET OUT OF MY WAY! I have no patience for traffic. So I'm curious to know how sitting quietly in a hospital room will help me with my driving?
One of the nurses in Vegas told me she thought I had the patience of Job. I wonder why my children have to go through things to help me learn patience, and then I wonder what lessons they need to be learning.
A friend asked me if she could learn the lessons that I am learning vicariously. The answer is yes! When we go through trials and we share them with others, we are doing our job to help others find strength to carry on.
I want to share something a friend put on her blog..."I believe that EVERY SINGLE one of us have a story to tell. Its at times a devastatingly sad story. Other times is wonderful, full of hope and light. I hope you will share yours with someone. Its in sharing that we find healing."
Because Mandi shared with me (and others), I found new strength. I discovered that we are not alone in our pain and sorrow. I hope that you will find someone to help you through your challenges.
I discovered a year ago that I can't ask the question "why me", anymore. Why, because I feel that it harbors anger and frustration, which are tools that the adversary wants us to feel, and it keeps us from progressing.
After some serious challenges in my life, I was ready to "quit, quit everything." As I went to my Bishop and asked for advice he had two simple questions for me: "Are you reading your scriptures? Are you saying your prayers?" No, I was doing neither. Then he asked me "Why not?" I didn't feel worthy.
As I humbled myself and started to do the things that were asked of me, my life changed. I could feel the atonement of my Savior and I could feel his comforting arms wrap around me and buoy me up. In the literal moments of feeling this I recognized that I had to change my question from why, to what am I supposed to learn from this and how do I help others.
My life has changed tremendously in the last year and especially in the last seven months. Trying to sell our home, making a major move, and trying to decide what to do with my life. I felt the prompting to not apply for college on the day I was going to sign up, and getting a job was not right either. Now I know why, I had other things that would need my attention.
I am the type of person that has to have things planned and organized ahead of time. The shortest distance between two points is a straight line. That's my motto. Life is not going that way right now, all I can do now is ask what should I be doing and praying for the strength to move forward.
I have been prepared to deal with this new experience in my life. It hasn't been easy, but I have found the strength from my Heavenly Father because of your prayers and mine. I don't know what will be next in my life. All I can do is keep moving forward, finding strength through my trials and continuing to be refined.
A friend sent me a video link about a year ago, it had such an impact on me that it came to my mind when I was driving to Vegas not knowing if my son would be alive or not. It gave me strength to continue forward. It is found on YouTube under My Story - Finding Hope & Strength Through Trials.
I WILL continue to move forward!
Ether 12:27
And if men come unto me I will show unto them their weakness. I give unto men weakness that they may be humble; and my grace is sufficient for all men that humble themselves before me; for if they humble themselves before me, and have faith in me, then will I make weak things become strong unto them.
It's interesting because I have great patience in certain areas, like sitting in a hospital room, but put me on the highway and GET OUT OF MY WAY! I have no patience for traffic. So I'm curious to know how sitting quietly in a hospital room will help me with my driving?
One of the nurses in Vegas told me she thought I had the patience of Job. I wonder why my children have to go through things to help me learn patience, and then I wonder what lessons they need to be learning.
A friend asked me if she could learn the lessons that I am learning vicariously. The answer is yes! When we go through trials and we share them with others, we are doing our job to help others find strength to carry on.
I want to share something a friend put on her blog..."I believe that EVERY SINGLE one of us have a story to tell. Its at times a devastatingly sad story. Other times is wonderful, full of hope and light. I hope you will share yours with someone. Its in sharing that we find healing."
Because Mandi shared with me (and others), I found new strength. I discovered that we are not alone in our pain and sorrow. I hope that you will find someone to help you through your challenges.
I discovered a year ago that I can't ask the question "why me", anymore. Why, because I feel that it harbors anger and frustration, which are tools that the adversary wants us to feel, and it keeps us from progressing.
After some serious challenges in my life, I was ready to "quit, quit everything." As I went to my Bishop and asked for advice he had two simple questions for me: "Are you reading your scriptures? Are you saying your prayers?" No, I was doing neither. Then he asked me "Why not?" I didn't feel worthy.
As I humbled myself and started to do the things that were asked of me, my life changed. I could feel the atonement of my Savior and I could feel his comforting arms wrap around me and buoy me up. In the literal moments of feeling this I recognized that I had to change my question from why, to what am I supposed to learn from this and how do I help others.
My life has changed tremendously in the last year and especially in the last seven months. Trying to sell our home, making a major move, and trying to decide what to do with my life. I felt the prompting to not apply for college on the day I was going to sign up, and getting a job was not right either. Now I know why, I had other things that would need my attention.
I am the type of person that has to have things planned and organized ahead of time. The shortest distance between two points is a straight line. That's my motto. Life is not going that way right now, all I can do now is ask what should I be doing and praying for the strength to move forward.
I have been prepared to deal with this new experience in my life. It hasn't been easy, but I have found the strength from my Heavenly Father because of your prayers and mine. I don't know what will be next in my life. All I can do is keep moving forward, finding strength through my trials and continuing to be refined.
A friend sent me a video link about a year ago, it had such an impact on me that it came to my mind when I was driving to Vegas not knowing if my son would be alive or not. It gave me strength to continue forward. It is found on YouTube under My Story - Finding Hope & Strength Through Trials.
I WILL continue to move forward!
Ether 12:27
And if men come unto me I will show unto them their weakness. I give unto men weakness that they may be humble; and my grace is sufficient for all men that humble themselves before me; for if they humble themselves before me, and have faith in me, then will I make weak things become strong unto them.
Friday, February 25, 2011
February 25th
It's been a rough one!
Jared refused to do anything this morning and became pretty frustrated with me not doing things for him. I decided to leave for a few hours. He called me within an hour, please come back. I didn't go right back, I took a break until noon.
The therapists and Dr. allowed Jared to have a break this morning and now they have put him on a one on one, meaning he can't be left alone at all, because he jumped out of bed without his helmet and tried to walk to St. George by himself. Scared everybody (Drs and Nurses and ME!) having him get out of bed so quickly and start walking.
Jared has an amazing attitude that keeps him laughing, but the impulsivity is a problem right now. He will not be allowed to leave this weekend because of that challenge. We were hoping he could leave for a couple of hours on Saturday and half the day on Sunday. Maybe next week.
Last night was awesome. Lee took me to Tucci's for dinner, I have not been a fan and haven't been back for nine years, BUT, they changed their menu about four years ago, AMAZING! Give it a try, it is across the street from Trolley Square.
The CT came back normal. The challenges with Jared's right hand is due to severe bruising deep inside the left part of the brain. Did you know that the left side of your brain controls your right half of your body and your right side controls the left half of your body. CRaZy!
Jared refused to do anything this morning and became pretty frustrated with me not doing things for him. I decided to leave for a few hours. He called me within an hour, please come back. I didn't go right back, I took a break until noon.
The therapists and Dr. allowed Jared to have a break this morning and now they have put him on a one on one, meaning he can't be left alone at all, because he jumped out of bed without his helmet and tried to walk to St. George by himself. Scared everybody (Drs and Nurses and ME!) having him get out of bed so quickly and start walking.
Jared has an amazing attitude that keeps him laughing, but the impulsivity is a problem right now. He will not be allowed to leave this weekend because of that challenge. We were hoping he could leave for a couple of hours on Saturday and half the day on Sunday. Maybe next week.
Last night was awesome. Lee took me to Tucci's for dinner, I have not been a fan and haven't been back for nine years, BUT, they changed their menu about four years ago, AMAZING! Give it a try, it is across the street from Trolley Square.
The CT came back normal. The challenges with Jared's right hand is due to severe bruising deep inside the left part of the brain. Did you know that the left side of your brain controls your right half of your body and your right side controls the left half of your body. CRaZy!
Thursday, February 24, 2011
Life is good!
We had a couple of rough days, but today has been awesome!
Jared did awesome in his therapy and earned time with his friend tonight! Lee and I are going to sneak away from the hospital and go out to dinner! The food here has been pretty good, just need some time away. I think Jared will appreciate some free time with his friend. Yesterday morning I walked Kayla outside and I realized I have not been outside since Friday night.
We went to a going away party for a girl that we met here. We went downstairs to the gift shop and Jared picked a little something out for Ia. Jared loves Ia (pronounced ee-uh). He couldn't wait to give her the doll he bought, and when we went to the party he was super excited about blowing one of those annoying horns for her.
We first met Ia and her mother at sacrament meeting Sunday. She loved waving to Jared. During OT therapy Jared was asked to make a sand art picture, he told the OT that was lame and childish. I suggested that he make one as a going away gift for Ia, he loved the idea. When he gave the card to her, she gave him a big hug! Ia asked her mom if she could take Jared home with her. She is six years old. Jared thinks it's cool that they are from Norway, hanging out in Provo while mom goes to BYU. By the way do you know how long it takes to fly to Norway? Twenty eight hours. We wish them well.
Before the party, Kayla and I took Jared downstairs to eat in the cafeteria. Jared was able to choose for himself, but when we went to sit down he asked if we could go back to the room. He told me it was too noisy for him (I'm one for quiet, it was not noisy at all to me). The audiologist told me that with his hearing loss, big areas will be hard for him. This is interesting, I now understand why he won't listen to his iPod. All he wants to do is listen to the quiet piano music from the cd player or television.
Jared is HaPpY and LaUghIng today!
Jared did awesome in his therapy and earned time with his friend tonight! Lee and I are going to sneak away from the hospital and go out to dinner! The food here has been pretty good, just need some time away. I think Jared will appreciate some free time with his friend. Yesterday morning I walked Kayla outside and I realized I have not been outside since Friday night.
We went to a going away party for a girl that we met here. We went downstairs to the gift shop and Jared picked a little something out for Ia. Jared loves Ia (pronounced ee-uh). He couldn't wait to give her the doll he bought, and when we went to the party he was super excited about blowing one of those annoying horns for her.
We first met Ia and her mother at sacrament meeting Sunday. She loved waving to Jared. During OT therapy Jared was asked to make a sand art picture, he told the OT that was lame and childish. I suggested that he make one as a going away gift for Ia, he loved the idea. When he gave the card to her, she gave him a big hug! Ia asked her mom if she could take Jared home with her. She is six years old. Jared thinks it's cool that they are from Norway, hanging out in Provo while mom goes to BYU. By the way do you know how long it takes to fly to Norway? Twenty eight hours. We wish them well.
Before the party, Kayla and I took Jared downstairs to eat in the cafeteria. Jared was able to choose for himself, but when we went to sit down he asked if we could go back to the room. He told me it was too noisy for him (I'm one for quiet, it was not noisy at all to me). The audiologist told me that with his hearing loss, big areas will be hard for him. This is interesting, I now understand why he won't listen to his iPod. All he wants to do is listen to the quiet piano music from the cd player or television.
Jared is HaPpY and LaUghIng today!
February 24th
Our mornings are really busy now. We have finally got a schedule put together for Jared, it seems to be helping.
Jared is still having a problem with impulsivity, saying things wihtout thinking and trying to climb in and out of bed without his helmet, he doesn't have a complete understanding of " why" he can't do things without the helmet.
Dr. Mike told us this morning that the neuro surgeon here has agreed to put Jared's bone piece back in, sometimes they won't mess with other surgeons work. This should happen in the next couple of weeks.
They want to run a CT Angiogram to make sure Jared doesn't have any broken blood vessels that would be causing his right arm to be so weak. If he does have some broken vessels, they will put him on an aspirin regimen because he would be at risk for strokes.
We love our night nurse, Grace. She has been a big help with creating schedules for Jared. She created different charts using skateboard themes. She has also spent some time helping me to better understand brain injuries and gave me "the book" to read.
Jared's visitors yesterday, besides the cute baby that he remembers very well, were Uncle Dee and cousin James, Roger Brady and Matt Pike, they brought a large get well card signed by the youth from the 14th ward. Thanks everybody! But, the most important person that showed up last night, DAD! We haven't seen Lee since last Wednesday. we met Lee in the lobby and Jared wanted to walk to him, they gave each other a giant bear hug! We are excited to have dad here for a few days.
Jared is still having a problem with impulsivity, saying things wihtout thinking and trying to climb in and out of bed without his helmet, he doesn't have a complete understanding of " why" he can't do things without the helmet.
Dr. Mike told us this morning that the neuro surgeon here has agreed to put Jared's bone piece back in, sometimes they won't mess with other surgeons work. This should happen in the next couple of weeks.
They want to run a CT Angiogram to make sure Jared doesn't have any broken blood vessels that would be causing his right arm to be so weak. If he does have some broken vessels, they will put him on an aspirin regimen because he would be at risk for strokes.
We love our night nurse, Grace. She has been a big help with creating schedules for Jared. She created different charts using skateboard themes. She has also spent some time helping me to better understand brain injuries and gave me "the book" to read.
Jared's visitors yesterday, besides the cute baby that he remembers very well, were Uncle Dee and cousin James, Roger Brady and Matt Pike, they brought a large get well card signed by the youth from the 14th ward. Thanks everybody! But, the most important person that showed up last night, DAD! We haven't seen Lee since last Wednesday. we met Lee in the lobby and Jared wanted to walk to him, they gave each other a giant bear hug! We are excited to have dad here for a few days.
Wednesday, February 23, 2011
February 23rd
Busy, busy, busy day!
This morning, Dr. Mike told us that Jared will be here about 2-3 weeks. He thinks that Jared's problem with his right arm is from a contusion on the left side of the brain, which shouldn't be permanent. Jared started using his right arm more last night to eat.
Jared had some pretty big meltdowns this morning during therapies. He refused to do anything for quite a time. We decided to set up rules...finish therapy, earn a reward. The reward Jared likes is having friends here. So he was motivated to finish therapy strong this afternoon so his friend, Hayden can spend some time here tomorrow night.
Jared had to have an audiology test. He has a partial hearing loss in his left ear. An ENT will be called in to do some more testing. The pre-diagnosis, is that the tiny bones behind the ear drum may be broken.
We had a special visitor, baby Keaton (5 weeks). His mommy Sammy and Sister Dunn came too. Thanks for coming to visit. Jared loved holding the baby.
We are headed down to get an EEG, to see how things look and see if we can take him off of the seizure medicine.
Better day than yesterday!
This morning, Dr. Mike told us that Jared will be here about 2-3 weeks. He thinks that Jared's problem with his right arm is from a contusion on the left side of the brain, which shouldn't be permanent. Jared started using his right arm more last night to eat.
Jared had some pretty big meltdowns this morning during therapies. He refused to do anything for quite a time. We decided to set up rules...finish therapy, earn a reward. The reward Jared likes is having friends here. So he was motivated to finish therapy strong this afternoon so his friend, Hayden can spend some time here tomorrow night.
Jared had to have an audiology test. He has a partial hearing loss in his left ear. An ENT will be called in to do some more testing. The pre-diagnosis, is that the tiny bones behind the ear drum may be broken.
We had a special visitor, baby Keaton (5 weeks). His mommy Sammy and Sister Dunn came too. Thanks for coming to visit. Jared loved holding the baby.
We are headed down to get an EEG, to see how things look and see if we can take him off of the seizure medicine.
Better day than yesterday!
Tuesday, February 22, 2011
February 22nd
It's been a little rough today. Jared had to do three, half hour sessions this morning with his three different therapists. Then we had to do it all over again this afternoon. He wasn't too happy about it. He has been a little defiant with me and has been yelling at me today.
One of the challenges is getting Jared to order a meal. He loves the food here, you get to order what you want, when you want and as much as you want. I have to demand that he orders something. He tells me he is not hungry, but when it arrives he gulps it down. He really does like the food, just ask anyone that has come by, that's all he can talk about.
I think one of the techs here thought I was being mean because I wouldn't help Jared put his shoe on. His OT wants him doing it himself. Jared was yelling at me, in front of the tech, so i told him if he wasn't nice I was going to leave until tonight, weird look from tech. When we were headed to another session of therapy I let go of the wheelchair for a second to grab something from my other hand and the wheelchair ran away and crashed into the door frame, oops! It jammed Jared's toes, the one without the shoe. The tech started acting weird with me. Yes, like I meant to do that! After therapy a hospital social worker shows up and asks me if I'm okay. Hmmm, wonder why she came in. Yes I'm fine. Now I'm in tears and feel like I'm the worst parent in the world. Aaaarrrggghhh! I think that I don't care for the tech.
We came back for a rest, Jared fell asleep listening to some quiet piano music from one of our favorite cd's, Matt Bachrach Waters Edge.
Jared's friend Sam is coming in tonight and bringing Jared, Dairy Delight....he is so excited. Remember he was dreaming about Dairy for a whole week!
The doctor this morning told us that Jared should be here for only a couple of weeks. He needs another EEG to clear him so they can take him off of the seizure meds. The PT told us today that this weekend we will be able to take Jared out of the hospital for a few hours.
Jared walked three quarters of the way back to his room this morning from the gym with a walker. He is doing an amazing job.
I think his brain has been overloaded today, tomorrow will be better for him!
Last night, Jared's friend Josh from St George called to talk to him, he was so excited. He was just asking me if we could call him, when he called. Good timing. Jared also talked with Vince, who was telling Jared about his church praying for him. After the phone call Jared read the card that Vince had sent, it had signatures from members of his congregation telling Jared they were praying for him. Jared asked me if that was okay that others were praying for him, what a great teaching moment that was, to be able to explain to Jared that all prayers are welcome, and can be heard and answered by our loving Father in Heaven. As he pondered that for a moment, he said "There are a lot of people praying for me right, that's why I'm doing so well!". Yes, that is why you are doing so well, Heavenly Father has great plans for you.
My friend Mary was here and was part of that aha moment. She shared some insight with Jared that was important and gave him food for thought. I am grateful she was here to share that with us.
I shared with Jared what faiths have been praying for him, and I'm sure there are others that I don't know about. Catholic, Calvary Chapel Men's Fellowship,
...pray for one another, that you may be healed. the effectual fervent prayer of a righteous man availeth much. James 5:16
One of the challenges is getting Jared to order a meal. He loves the food here, you get to order what you want, when you want and as much as you want. I have to demand that he orders something. He tells me he is not hungry, but when it arrives he gulps it down. He really does like the food, just ask anyone that has come by, that's all he can talk about.
I think one of the techs here thought I was being mean because I wouldn't help Jared put his shoe on. His OT wants him doing it himself. Jared was yelling at me, in front of the tech, so i told him if he wasn't nice I was going to leave until tonight, weird look from tech. When we were headed to another session of therapy I let go of the wheelchair for a second to grab something from my other hand and the wheelchair ran away and crashed into the door frame, oops! It jammed Jared's toes, the one without the shoe. The tech started acting weird with me. Yes, like I meant to do that! After therapy a hospital social worker shows up and asks me if I'm okay. Hmmm, wonder why she came in. Yes I'm fine. Now I'm in tears and feel like I'm the worst parent in the world. Aaaarrrggghhh! I think that I don't care for the tech.
We came back for a rest, Jared fell asleep listening to some quiet piano music from one of our favorite cd's, Matt Bachrach Waters Edge.
Jared's friend Sam is coming in tonight and bringing Jared, Dairy Delight....he is so excited. Remember he was dreaming about Dairy for a whole week!
The doctor this morning told us that Jared should be here for only a couple of weeks. He needs another EEG to clear him so they can take him off of the seizure meds. The PT told us today that this weekend we will be able to take Jared out of the hospital for a few hours.
Jared walked three quarters of the way back to his room this morning from the gym with a walker. He is doing an amazing job.
I think his brain has been overloaded today, tomorrow will be better for him!
Last night, Jared's friend Josh from St George called to talk to him, he was so excited. He was just asking me if we could call him, when he called. Good timing. Jared also talked with Vince, who was telling Jared about his church praying for him. After the phone call Jared read the card that Vince had sent, it had signatures from members of his congregation telling Jared they were praying for him. Jared asked me if that was okay that others were praying for him, what a great teaching moment that was, to be able to explain to Jared that all prayers are welcome, and can be heard and answered by our loving Father in Heaven. As he pondered that for a moment, he said "There are a lot of people praying for me right, that's why I'm doing so well!". Yes, that is why you are doing so well, Heavenly Father has great plans for you.
My friend Mary was here and was part of that aha moment. She shared some insight with Jared that was important and gave him food for thought. I am grateful she was here to share that with us.
I shared with Jared what faiths have been praying for him, and I'm sure there are others that I don't know about. Catholic, Calvary Chapel Men's Fellowship,
...pray for one another, that you may be healed. the effectual fervent prayer of a righteous man availeth much. James 5:16
Monday, February 21, 2011
Laughter
The most wasted of all days is one without LaUghTeR!
- Early one morning Jared was begging the nurse to let him walk home from Vegas, he offered her a million dollars. When she accepted, his response was, "Well, I don't actually have the money but I will get a job and pay you back."
- The next night he offered her his iPod, she told him she still wanted the million.
- One day he was so agitated the nurse decided to give him his meds early, as she was walking down the hall, he YELLS, "Hey how long does it take you to walk your butt down the hall?" (I'm mortified)
- When he was being fitted for his helmet he was yelling, "You're killing me, it's hot, I'm going to die in here.". He had to have a plastic bag and stocking over his head so they could mold a helmet.
- While agitated early one morning he started yelling at the monitors to shut up. When they finally stopped beeping, he yelled again, "That's right, that's what I'm talking about."
- One night he was yelling for me, when I would look at him and tell him I was there he would yell "You're not my mom, mom.". Who am I then, "Mom." When the nurse told him that I was his mom, he said "No she's too old to be my mom.". I have aged a little and turned more gray.
- When he rolled over he got his right arm stuck underneath him, as I was trying to lift his dead weight up and pull his arm out he started screaming, "Help me, my mom's freaking out on me, help!"
- During physical therapy, he was sitting in a chair and he let me know he had to go to the bathroom. I told him we had to wait a minute to get him back in bed, Jared noticed his dad coming down the long hall and he started screaming, "Dad help me, mom won't let me go to the bathroom, help, she's mean."
Most of these situations happened on the same day in Vegas. Now you know why I ran away for a few hours.
Later that evening when I returned, Lee had given Jared a father's blessing. Jared was much calmer and was asking for a hug when I came in.
Even last night after all of his teasing me, he asked me to tuck him in bed and reminded me we needed to do family prayer. What a blessing it has been to continue family prayer kneeling beside his bed, as one.
Today Jared had some more visitors, Grandma Lin, Grandpa Wil, Aunt Lis and Uncle Bryson. His best friend since second grade, Hayden and his family stopped by and brought him a video game and a six pack of Jones Soda. I think Jared is getting spoiled. He is grateful for so many awesome friends and family!
- Early one morning Jared was begging the nurse to let him walk home from Vegas, he offered her a million dollars. When she accepted, his response was, "Well, I don't actually have the money but I will get a job and pay you back."
- The next night he offered her his iPod, she told him she still wanted the million.
- One day he was so agitated the nurse decided to give him his meds early, as she was walking down the hall, he YELLS, "Hey how long does it take you to walk your butt down the hall?" (I'm mortified)
- When he was being fitted for his helmet he was yelling, "You're killing me, it's hot, I'm going to die in here.". He had to have a plastic bag and stocking over his head so they could mold a helmet.
- While agitated early one morning he started yelling at the monitors to shut up. When they finally stopped beeping, he yelled again, "That's right, that's what I'm talking about."
- One night he was yelling for me, when I would look at him and tell him I was there he would yell "You're not my mom, mom.". Who am I then, "Mom." When the nurse told him that I was his mom, he said "No she's too old to be my mom.". I have aged a little and turned more gray.
- When he rolled over he got his right arm stuck underneath him, as I was trying to lift his dead weight up and pull his arm out he started screaming, "Help me, my mom's freaking out on me, help!"
- During physical therapy, he was sitting in a chair and he let me know he had to go to the bathroom. I told him we had to wait a minute to get him back in bed, Jared noticed his dad coming down the long hall and he started screaming, "Dad help me, mom won't let me go to the bathroom, help, she's mean."
Most of these situations happened on the same day in Vegas. Now you know why I ran away for a few hours.
Later that evening when I returned, Lee had given Jared a father's blessing. Jared was much calmer and was asking for a hug when I came in.
Even last night after all of his teasing me, he asked me to tuck him in bed and reminded me we needed to do family prayer. What a blessing it has been to continue family prayer kneeling beside his bed, as one.
Today Jared had some more visitors, Grandma Lin, Grandpa Wil, Aunt Lis and Uncle Bryson. His best friend since second grade, Hayden and his family stopped by and brought him a video game and a six pack of Jones Soda. I think Jared is getting spoiled. He is grateful for so many awesome friends and family!
February 21st
I'm loving being here at Primary Children's Hospital! Jared and I have both been able to sleep a solid ten hours the last two nights! Who says you can't catch up on sleep?
Yesterday was amazing. Jared stood up with a little help for balance and got into a wheelchair. We were able to go upstairs to sacrament services. We both felt the spirit strong and it testified to the both of us that we were where we belong. We are grateful to be members of the Church of Jesus Christ of Latter Day Saints.
I am grateful I returned home instead of staying in Vegas. I know that Lee had better judgment than I did at the time of making the decision to come to PCH for rehab. I am grateful to have a loving and caring husband that tends to "know" more than me (at least insights).
Yesterday Jared had some from friends stop by, Isaac, Eric and Willy. Thanks for coming by!
His Grandma Lin and Grandpa Wil, cousin Matt and Jason also stopped by. Later his two cousins, Chase and Tayler stopped by because their little sister is on the third floor.
Jared's bone flap(I really hate that name) is in CA because Vegas doesn't have a facility to store it and Jared was too skinny to put it into his abdomen. They thought he was skinny before, he's really skinny now! PCH is working on having it transferred here to store. Jared weighs 92 lbs right now, on the day of the accident he weighed 129.5!
Jared had physical therapy today, with help for balance, he walked on a treadmill. For occupational therapy he had to put blocks on a board, balance on his knees with his arms extended. Then speech therapy made him write on his blog and answer some short term memory questions. Amy, the speech therapist knows my dad. What a coincidence.
We are happy, happy, happy. Jared still thinks he's funny! He really knows how to roll with the punches. He is a great inspiration. If we could all deal with challenges the way he has, I think life would be easier to deal with. This morning he was getting dressed and as he pulled up his shorts he started singing "I'm a big boy now!"
Yesterday he discovered that part if his skull was missing, but instead of freaking out, he laughed about it and tells everyone who enters the room " Hey, part of my head is missing, do you want to feel?". It's mushy like an overripe kiwi. Gross!!
Check out Jared's post from earlier, he had to decide what he wanted to say and type it himself.
Yesterday was amazing. Jared stood up with a little help for balance and got into a wheelchair. We were able to go upstairs to sacrament services. We both felt the spirit strong and it testified to the both of us that we were where we belong. We are grateful to be members of the Church of Jesus Christ of Latter Day Saints.
I am grateful I returned home instead of staying in Vegas. I know that Lee had better judgment than I did at the time of making the decision to come to PCH for rehab. I am grateful to have a loving and caring husband that tends to "know" more than me (at least insights).
Yesterday Jared had some from friends stop by, Isaac, Eric and Willy. Thanks for coming by!
His Grandma Lin and Grandpa Wil, cousin Matt and Jason also stopped by. Later his two cousins, Chase and Tayler stopped by because their little sister is on the third floor.
Jared's bone flap(I really hate that name) is in CA because Vegas doesn't have a facility to store it and Jared was too skinny to put it into his abdomen. They thought he was skinny before, he's really skinny now! PCH is working on having it transferred here to store. Jared weighs 92 lbs right now, on the day of the accident he weighed 129.5!
Jared had physical therapy today, with help for balance, he walked on a treadmill. For occupational therapy he had to put blocks on a board, balance on his knees with his arms extended. Then speech therapy made him write on his blog and answer some short term memory questions. Amy, the speech therapist knows my dad. What a coincidence.
We are happy, happy, happy. Jared still thinks he's funny! He really knows how to roll with the punches. He is a great inspiration. If we could all deal with challenges the way he has, I think life would be easier to deal with. This morning he was getting dressed and as he pulled up his shorts he started singing "I'm a big boy now!"
Yesterday he discovered that part if his skull was missing, but instead of freaking out, he laughed about it and tells everyone who enters the room " Hey, part of my head is missing, do you want to feel?". It's mushy like an overripe kiwi. Gross!!
Check out Jared's post from earlier, he had to decide what he wanted to say and type it himself.
Message from JARED
The following post was typed by Jared as part of his speech therapy:
hey its jared
i will be in salt lake for about a .month
im in primary childrens hospital
come see me pleASE
i was boxing and got knocked out
i have a awesome scar on my head
im missing part of my skull
my skull is in carls bag aka carls bad
i have to where a helmet like a dork haha
18016622017 number to my room
call me
hey its jared
i will be in salt lake for about a .month
im in primary childrens hospital
come see me pleASE
i was boxing and got knocked out
i have a awesome scar on my head
im missing part of my skull
my skull is in carls bag aka carls bad
i have to where a helmet like a dork haha
18016622017 number to my room
call me
Saturday, February 19, 2011
Visiting Hours
Jared can have his friends visit from 12-9 pm everyday. We chose these hours to help with being "mobbed" and to allow for time for our family to be here. Jared will also have therapy in the mornings. We are at Primary Childrens Hospital. If you need directions, want to call and talk to Jared or see if it is a good time to come in, give us a shout. 801-662-2017
Can't wait to here from friends!
My family and friends are welcome to come when you would like.
The doctor seems to think we should only be here for about a month or less. She expects a full and complete recovery.
The PT had Jared get up and with help walk across the room. He did an awesome job, considering two days ago he couldn't stand at all!
PCH does things different than UMC in Vegas. They don't think Jared needs to stay on the anti-seizure meds for four months. They are going to take him off this week. They also believe in putting the bone flap back into place, soon. The nice thing, they can do the surgery here, so we don't have to go back to Vegas in four months.
Funny for the day (this will be funny to those who have seen Young Frankenstein): Amy, Jared's speech therapist was trying to locate his bone flap. In the dictation notes from UMC it says his piece is located in Karl's bag California. Should be Carlsbad CA. LAUGHING MYSELF SILLY! I would hope that his bone was in Jared's bag!!! HA HA HA
Can't wait to here from friends!
My family and friends are welcome to come when you would like.
The doctor seems to think we should only be here for about a month or less. She expects a full and complete recovery.
The PT had Jared get up and with help walk across the room. He did an awesome job, considering two days ago he couldn't stand at all!
PCH does things different than UMC in Vegas. They don't think Jared needs to stay on the anti-seizure meds for four months. They are going to take him off this week. They also believe in putting the bone flap back into place, soon. The nice thing, they can do the surgery here, so we don't have to go back to Vegas in four months.
Funny for the day (this will be funny to those who have seen Young Frankenstein): Amy, Jared's speech therapist was trying to locate his bone flap. In the dictation notes from UMC it says his piece is located in Karl's bag California. Should be Carlsbad CA. LAUGHING MYSELF SILLY! I would hope that his bone was in Jared's bag!!! HA HA HA
Yes we made it!
Jared was flown out at 12:00 pm Nevada time yesterday and was at Primary Childrens by 3:30. Kayla, Justin, Jason and Nia (Jason's girlfriend) were here to meet Jared. When the nurse asked Jared if he recognized them he began to cry and cite their names. He even told Jason, " thanks for dressing up for me."
Jared has adapted pretty well here, already. He stayed awake from the time he arrived until nine o'clock. He slept until seven thirty this morning.
Apparently, Jared thinks he's a comedienne now. He does this creepy thing with his eyes. He can make them shake, or have one stay in place while the other one moves around. Gross! So yesterday he kept teasing the nurses. When a nurse would come in to check on him, he would ask them if his eyes were normal. When they would go to check them, he would do one of his eye tricks and start laughing.
When the nurse was going to take him on a tour of the facility, she asked him if he could walk, Jared told her no. When she left to get a wheelchair he began laughing hysterically. Kayla asked him what was so funny, his response was "I can walk, I just want her to push me around." My kids thought this was funny because Jared can't remember that he can't walk, yet. Side note - the doctor says he should be up walking within the next 3-4 weeks.
He enjoyed watching Napoleon Dynamite with his family and would recite every line before it happened. Which made for better comedy for them!
We all need to laugh! After all, Laughter is the best medicine!
What about me? As I was leaving the parking lot in Vegas I realized I couldn't find my phone. I tore my purse and car apart, no phone. Had to park, go back through security , go upstairs and search Jared's room. No luck. Went back to the car, tore it apart again! Decided it didn't matter. As I was leaving, I remembered I had to sign papers at the nurses station. Parked again, went through security, again, back upstairs and sure enough, Pat the nurse had it. So, forty five minutes later, I'm on my way. Stopped in St. George, grabbed some clothes and off I went.
I was running low on fuel, sixty miles left on tank, when I blew past the gas station off the highway thinking I was in Nephi. I was going to go to the north Nephi exit to fill up. Sign - Nephi 36 miles. By this point my gauge is below the E. Ahhh, what do I do now, speed up (stayed within the six over limit). I have to make a quick decision. Turn off at the Levan exit, I know there is ONE gas station there. Driving on the back road to Levan, I notice it's thirteen miles away, dang, what happens if I run out of gas here, no one will be coming by. Speed! Yes I finally made it to the gas station, but now I have cost myself an extra half hour.
I finally make it to Salt Lake, and instead of going up first, I call to get directions from Kayla's husband, Justin. I take his route, which was a bad idea. I am now lost. I know where I am, but I'm lost. Another twenty minutes go by before I finally find the hospital. It is now nine thirty. I enter, chat for a few and crash on the couch.
How nice it is to have a couch to sleep on and not a chair. I was able to sleep all night, a real honest solid sleep. Why? Because the nurse made Jared wear his helmet to bed, lowered the bed (almost to the floor), and set an alarm in case he tried to sit up. WOW! I didn't have to be on guard all night.
*By the way, when I told Justin his directions were bad, he said "Oh ya, I forgot you were coming from that direction."
Hope you have a good laugh today. Tomorrow I will post some funnies that Jared has said and done during the past week. Some were embarrassing at the time, now I can laugh about them.
Once we get things figured out in a while, I will post when visiting hours are and give you a number to call and schedule a time to visit (Jared's friends).
Jared has adapted pretty well here, already. He stayed awake from the time he arrived until nine o'clock. He slept until seven thirty this morning.
Apparently, Jared thinks he's a comedienne now. He does this creepy thing with his eyes. He can make them shake, or have one stay in place while the other one moves around. Gross! So yesterday he kept teasing the nurses. When a nurse would come in to check on him, he would ask them if his eyes were normal. When they would go to check them, he would do one of his eye tricks and start laughing.
When the nurse was going to take him on a tour of the facility, she asked him if he could walk, Jared told her no. When she left to get a wheelchair he began laughing hysterically. Kayla asked him what was so funny, his response was "I can walk, I just want her to push me around." My kids thought this was funny because Jared can't remember that he can't walk, yet. Side note - the doctor says he should be up walking within the next 3-4 weeks.
He enjoyed watching Napoleon Dynamite with his family and would recite every line before it happened. Which made for better comedy for them!
We all need to laugh! After all, Laughter is the best medicine!
What about me? As I was leaving the parking lot in Vegas I realized I couldn't find my phone. I tore my purse and car apart, no phone. Had to park, go back through security , go upstairs and search Jared's room. No luck. Went back to the car, tore it apart again! Decided it didn't matter. As I was leaving, I remembered I had to sign papers at the nurses station. Parked again, went through security, again, back upstairs and sure enough, Pat the nurse had it. So, forty five minutes later, I'm on my way. Stopped in St. George, grabbed some clothes and off I went.
I was running low on fuel, sixty miles left on tank, when I blew past the gas station off the highway thinking I was in Nephi. I was going to go to the north Nephi exit to fill up. Sign - Nephi 36 miles. By this point my gauge is below the E. Ahhh, what do I do now, speed up (stayed within the six over limit). I have to make a quick decision. Turn off at the Levan exit, I know there is ONE gas station there. Driving on the back road to Levan, I notice it's thirteen miles away, dang, what happens if I run out of gas here, no one will be coming by. Speed! Yes I finally made it to the gas station, but now I have cost myself an extra half hour.
I finally make it to Salt Lake, and instead of going up first, I call to get directions from Kayla's husband, Justin. I take his route, which was a bad idea. I am now lost. I know where I am, but I'm lost. Another twenty minutes go by before I finally find the hospital. It is now nine thirty. I enter, chat for a few and crash on the couch.
How nice it is to have a couch to sleep on and not a chair. I was able to sleep all night, a real honest solid sleep. Why? Because the nurse made Jared wear his helmet to bed, lowered the bed (almost to the floor), and set an alarm in case he tried to sit up. WOW! I didn't have to be on guard all night.
*By the way, when I told Justin his directions were bad, he said "Oh ya, I forgot you were coming from that direction."
Hope you have a good laugh today. Tomorrow I will post some funnies that Jared has said and done during the past week. Some were embarrassing at the time, now I can laugh about them.
Once we get things figured out in a while, I will post when visiting hours are and give you a number to call and schedule a time to visit (Jared's friends).
Friday, February 18, 2011
Delayed...again
Ugh...I knew there was more than one reason why I don't like Obama. Jared's flight has been delayed, again. Air-med has to come from San Francisco this morning. They are being delayed because Pres. Obama's plane will be landing there this morning, so all flights are delayed.
Supposedly, they will be here around 11:30 and Jared will be in Salt Lake by 3:30. I will believe that when it actually happens! I bet we don't get out until later.
Jared had a GREAT night sleep. He slept from eight thirty until four. He only woke up because his stomach started hurting and then he began hurling! Gross, I know. He is doing well now.
Wish us luck today!
Supposedly, they will be here around 11:30 and Jared will be in Salt Lake by 3:30. I will believe that when it actually happens! I bet we don't get out until later.
Jared had a GREAT night sleep. He slept from eight thirty until four. He only woke up because his stomach started hurting and then he began hurling! Gross, I know. He is doing well now.
Wish us luck today!
Thursday, February 17, 2011
Headed out....
The plans have been finalized. Jared will be sent by air med tomorrow morning at 8:30 am. He should arrive at PCH around 12:30 Utah time.
I had a small meltdown, had some lunch and took a nap with Jared for about 3 hours. Ready to rock-n-roll again!
A message from JARED: What's up everybody?
I was just teasing him, don't you want to put more. He just smiled and shook his head no. Jared is laughing and smiling a ton! What a beautiful sight to see.
A gentleman from Lee's work sent Jared a card with a scripture that helped me today. Thanks Rob!
Isaiah 40:28-30
Do you not know? Have you not heard? The LORD is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom. He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.
I had a small meltdown, had some lunch and took a nap with Jared for about 3 hours. Ready to rock-n-roll again!
A message from JARED: What's up everybody?
I was just teasing him, don't you want to put more. He just smiled and shook his head no. Jared is laughing and smiling a ton! What a beautiful sight to see.
A gentleman from Lee's work sent Jared a card with a scripture that helped me today. Thanks Rob!
Isaiah 40:28-30
Do you not know? Have you not heard? The LORD is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom. He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.
Still in Vegas
Grrrr.....still in Vegas. We received a call from air med asking for seven thousand dollars up front to cover part of the flight costs. Ya right! Send him by ambulance then. So we have been waiting all day yesterday and this morning to find out what's up. Finally they called and told us they would take him at 5:00 tonight. How am I supposed to drive all night on little sleep.
Now PCH just called and they don't want Jared to come until tomorrow morning. What? Apparently they are still sending him by air med for only fifteen hundred. Whatever! I still don't know when we will be there. The two hospitals and air med are trying to coordinate everything. We may be there sometime this month! Extremely frustrated!
But, Jared is doing well, his short term memory is getting a little better each day. He still gets frustrated easily.
His OT/PT wanted him to be on a film for the UMC hospital as one of their star students. He has progressed so much in just a few days. So This morning he was filmed in therapy, and then they turned the camera on me and filmed me answering questions. Nice, slept in the hospital, no make up and who knows what with the hair!
Now PCH just called and they don't want Jared to come until tomorrow morning. What? Apparently they are still sending him by air med for only fifteen hundred. Whatever! I still don't know when we will be there. The two hospitals and air med are trying to coordinate everything. We may be there sometime this month! Extremely frustrated!
But, Jared is doing well, his short term memory is getting a little better each day. He still gets frustrated easily.
His OT/PT wanted him to be on a film for the UMC hospital as one of their star students. He has progressed so much in just a few days. So This morning he was filmed in therapy, and then they turned the camera on me and filmed me answering questions. Nice, slept in the hospital, no make up and who knows what with the hair!
Wednesday, February 16, 2011
Headed to rehab
We just received a phone call from Primary Childrens Hospital that Jared will be flown to their facility either today or tomorrow. Jared is excited he gets to fly and was laughing that I have to drive.
Things around here either happen very, very, veeeerrrryyyy slow, or it's a whirlwind.
So, as promised I returned to the RMcD house this morning around 7 for some sleep. I crashed, until I received a phone call at 10 from the front desk, we are shutting off the water and we have to get into all of the rooms. Aaarrrggghhhh!
Get up, get ready. Then the thought came to my mind, I should clean the room, pack my stuff and load my car. Glad I followed that prompting. Who knows when I will have to leave.
Earlier Jared was asking about his friend Josh from St. George. He wants you to know he misses you and hopes to see you soon.
I will keep posting on our progress, hopefully we will find out soon when we get out of here!
Things around here either happen very, very, veeeerrrryyyy slow, or it's a whirlwind.
So, as promised I returned to the RMcD house this morning around 7 for some sleep. I crashed, until I received a phone call at 10 from the front desk, we are shutting off the water and we have to get into all of the rooms. Aaarrrggghhhh!
Get up, get ready. Then the thought came to my mind, I should clean the room, pack my stuff and load my car. Glad I followed that prompting. Who knows when I will have to leave.
Earlier Jared was asking about his friend Josh from St. George. He wants you to know he misses you and hopes to see you soon.
I will keep posting on our progress, hopefully we will find out soon when we get out of here!
February 15th
*I wrote this post yesterday, thought I posted it! Oops.
Aaarrrggghhhh! Rough night for all.
Jared was extremely frustrated with everything, couldn't get comfortable and just down right agitated with a capital A.
This made for a long night for me! After being yelled at all night, I decided I was done at 10:00 this morning. So I made a selfish decision to leave for a few hours. I went shopping and bought myself a new outfit, so I could feel like me again. I even put make-up on today. Remember, I came to Vegas with the dirty clothes I was wearing that horrible night. The only clothes I have been wearing are oversized hoodies or undersized hoodies. Good to feel better, now I'm back on my game to help with Jared.
I talked to Lee this morning, he will be coming back tonight to give me a break. I have been at the hospital about twenty two hours a day. What we won't sacrifice for someone we love.
The social worker here is trying to find a facility for us in Salt Lake that will fit Jared's needs. I think tomorrow they will move him from PICU, to a regular room. Which will be better for visitors. Still not sure when we will be out of here.
One of Jared's friends was wondering if Jared could do a post. I think this is a great idea, so I will talk to Jared and see if he would like to post something. It will be later today.
Went to dinner with Lee while Jared was resting, then I returned to the RMcD house for some sleep. Woohoo, I got 5 hours, returned for the night shift. Lee was a little frustrated with me telling me I should have slept longer. Longer, are you kidding me 5 hours beats 1 1/2 hours any time!! I will go back to the house in the morning and sleep all day, I promise. My posts may be later. But know, all is well.
Sending a HaPPy BiRtHDaY out to Karen & Jackie. Jared wants me to tell you HAPPY BIRTHDAY! He remembers you. Hope your day is awesome!
Aaarrrggghhhh! Rough night for all.
Jared was extremely frustrated with everything, couldn't get comfortable and just down right agitated with a capital A.
This made for a long night for me! After being yelled at all night, I decided I was done at 10:00 this morning. So I made a selfish decision to leave for a few hours. I went shopping and bought myself a new outfit, so I could feel like me again. I even put make-up on today. Remember, I came to Vegas with the dirty clothes I was wearing that horrible night. The only clothes I have been wearing are oversized hoodies or undersized hoodies. Good to feel better, now I'm back on my game to help with Jared.
I talked to Lee this morning, he will be coming back tonight to give me a break. I have been at the hospital about twenty two hours a day. What we won't sacrifice for someone we love.
The social worker here is trying to find a facility for us in Salt Lake that will fit Jared's needs. I think tomorrow they will move him from PICU, to a regular room. Which will be better for visitors. Still not sure when we will be out of here.
One of Jared's friends was wondering if Jared could do a post. I think this is a great idea, so I will talk to Jared and see if he would like to post something. It will be later today.
Went to dinner with Lee while Jared was resting, then I returned to the RMcD house for some sleep. Woohoo, I got 5 hours, returned for the night shift. Lee was a little frustrated with me telling me I should have slept longer. Longer, are you kidding me 5 hours beats 1 1/2 hours any time!! I will go back to the house in the morning and sleep all day, I promise. My posts may be later. But know, all is well.
Sending a HaPPy BiRtHDaY out to Karen & Jackie. Jared wants me to tell you HAPPY BIRTHDAY! He remembers you. Hope your day is awesome!
Tuesday, February 15, 2011
Feb 15th Night post
From Lee. I left work early today to come back and spell Michelle. She has been in the picu since I left on Sunday. After a quick dinner, she headed to the McD house for some much needed sleep. Jared is ornery, but I can't really blame him. He seems much more aware than he was on Sunday. He's had a hard time settling down tonight. I finally asked him if he wanted a Priesthood blessing. He said yes, please. I laid my hands on his head and blessed him to sleep well and be calm. Almost immediately, he fell asleep and has remained calm since. There is much power in the Priesthood. I'm grateful to have the opportunity to be an instrument in the Lords hands.
Tonights funny moment. Jared keeps ripping off his finger monitor ......I think it's for his pulse. It has a red led light on the end of it. I told Jared to quit pulling the monitor off. He looked at me and with a very serious tone said: "Dad, it's not a monitor, it's my iPod charger." Good stuff, I can tease him about later.
Tonights funny moment. Jared keeps ripping off his finger monitor ......I think it's for his pulse. It has a red led light on the end of it. I told Jared to quit pulling the monitor off. He looked at me and with a very serious tone said: "Dad, it's not a monitor, it's my iPod charger." Good stuff, I can tease him about later.
Monday, February 14, 2011
February 14th - Gratitude
It's official, they finally took Jared's neck brace off! Jared was so happy he started crying and saying thank you, thank you, thank you, thank you, in between big crocodile tears!
We are still waiting to find out where we will do rehab, this hospital is a little slow!
Pretty quiet day. Hopefully we will have some news tomorrow.
I'm just sitting here watching Finding Nemo trying to get Jared settled down for the night...he remembers I speak whale!
As Dory said "When life gets you down do you wanna know what you've gotta do?
Just keep swimming. Just keep swimming. Just keep swimming, swimming, swimming. What do we do? We swim, swim!"
Sending love out to all, have a good evening!
We are still waiting to find out where we will do rehab, this hospital is a little slow!
Pretty quiet day. Hopefully we will have some news tomorrow.
I'm just sitting here watching Finding Nemo trying to get Jared settled down for the night...he remembers I speak whale!
As Dory said "When life gets you down do you wanna know what you've gotta do?
Just keep swimming. Just keep swimming. Just keep swimming, swimming, swimming. What do we do? We swim, swim!"
Sending love out to all, have a good evening!
Valentines Day
HAPPY VALENTINES DAY!
My HEART is full today!
Sending my Love to everyone!
Remember the days when we would drop off valentine cards on doorsteps, ring the bell and run. We need those days back!
It's quiet right now. Waiting for the MRI test results to come back. Then decision time. It was a quiet night. Jared slept better having all the tubes removed. He seems to be more alert today, asking a lot of questions.
I think I mentioned before that the Ronald McDonald House makes 120 lunches for families in pediatric waiting rooms. I received one today, it was so cute. They had some kids draw on the lunch sacks and then we all got a homemade valentine card inside with a box of candy hearts. My card was from a small child named Jabori, have a nice day and was scribbled on...I'm sure the child was about three years old. How sweet!
I received flowers today from my baby girl Kayla. She is so thoughtful. Flowers make me happy!
Here's my shout-out to ALL of my family everywhere!
I LOVE YOU FOREVER! I LOVE YOU ALWAYS!
My HEART is full today!
Sending my Love to everyone!
Remember the days when we would drop off valentine cards on doorsteps, ring the bell and run. We need those days back!
It's quiet right now. Waiting for the MRI test results to come back. Then decision time. It was a quiet night. Jared slept better having all the tubes removed. He seems to be more alert today, asking a lot of questions.
I think I mentioned before that the Ronald McDonald House makes 120 lunches for families in pediatric waiting rooms. I received one today, it was so cute. They had some kids draw on the lunch sacks and then we all got a homemade valentine card inside with a box of candy hearts. My card was from a small child named Jabori, have a nice day and was scribbled on...I'm sure the child was about three years old. How sweet!
I received flowers today from my baby girl Kayla. She is so thoughtful. Flowers make me happy!
Here's my shout-out to ALL of my family everywhere!
I LOVE YOU FOREVER! I LOVE YOU ALWAYS!
Sunday, February 13, 2011
February 13th - Update
It's been an emotional day for everyone. You never know what the day will bring.
Jared has been emotional again today. He started crying at one point saying he was sorry for taking my car, wrecking it and causing so much trouble. How much it hurts watching Jared try to put things back into place.
Lee and I left for a few hours when he was sedated. I wanted some time with Lee, away from the hospital and outside in the sunshine. We went for a short drive to see Red Rock. What a beautiful place. It was nice to be outside in the sunshine.
I had an emotional day, Lee left tonight to go back to St. George. If I end up leaving this week and going back to the Salt Lake area it will be a fast transition. Run to St. George load some clothes and leave. I know this will be best for Jared but I don't want to leave Lee. I' m being a little selfish at the moment.
Around 5:00 pm Jared begins to get restless, agitated and emotional. As I sat with him crying, he pulled my hand up, kissed it and said "I Love You, mom." Around 8:00 he told me he loved me again and wanted a kiss. How sweet and tender. I love you, Jared. He is such a beautiful boy.
Dr. ? (forgot his name), the neurologist came to do a quick assessment. He told me Jared should be further along therapeutically. Jared has two different parts of his brain that are damaged. This explains the weakness in his right arm and trouble with his left leg. The bleeding, however, was on the outside of the cortex. Which is good. They will have more info tomorrow after the MRI.
About twenty minutes later he returned and told me that Jared's delay is due to an overdose of a strong anti-seizure medication (adult strength). He will put him on a milder med starting tomorrow. Anti-seizure meds are needed after a brain trauma because the blood on the brain irritates the nerves and causes seizures. Jared will have to be on the meds for about three months, long enough for the swelling to go down.
Dr. Sharma came in around 8:00 and told the nurse to pull his NG tube tonight at midnight, and remove the central line now. Maybe Jared can get a little more comfortable and I can sleep a little more tonight, not having to stop him from pulling tubes out. I did get a solid four hours last night. It has only taken me two weeks to figure out how to sleep comfortably in a chair! Score, no sore hips tomorrow!
I have received many texts, calls, and articles to read since my post yesterday. Thank you, they have been a big help. I will be passing on info to the other family here that Lee mentioned. They too are frustrated with the lack of answers and information.
I felt guilty and sad yesterday when they stood at the end of the hall watching Jared sit up in a chair. I know they were happy for us, but my heart breaks for them. My prayers continue for them and their son.
I not only forgot the neurologists name but I even forgot Jared's name and who I was. In order to get into PICU, you have to call on a phone, state the patients name and who you are. When the nurse answered the phone, all I could say was uhhh! Lee quickly came to my rescue.
Thank you for your continued support, prayers and kind words.
We love all of you.
Jared has been emotional again today. He started crying at one point saying he was sorry for taking my car, wrecking it and causing so much trouble. How much it hurts watching Jared try to put things back into place.
Lee and I left for a few hours when he was sedated. I wanted some time with Lee, away from the hospital and outside in the sunshine. We went for a short drive to see Red Rock. What a beautiful place. It was nice to be outside in the sunshine.
I had an emotional day, Lee left tonight to go back to St. George. If I end up leaving this week and going back to the Salt Lake area it will be a fast transition. Run to St. George load some clothes and leave. I know this will be best for Jared but I don't want to leave Lee. I' m being a little selfish at the moment.
Around 5:00 pm Jared begins to get restless, agitated and emotional. As I sat with him crying, he pulled my hand up, kissed it and said "I Love You, mom." Around 8:00 he told me he loved me again and wanted a kiss. How sweet and tender. I love you, Jared. He is such a beautiful boy.
Dr. ? (forgot his name), the neurologist came to do a quick assessment. He told me Jared should be further along therapeutically. Jared has two different parts of his brain that are damaged. This explains the weakness in his right arm and trouble with his left leg. The bleeding, however, was on the outside of the cortex. Which is good. They will have more info tomorrow after the MRI.
About twenty minutes later he returned and told me that Jared's delay is due to an overdose of a strong anti-seizure medication (adult strength). He will put him on a milder med starting tomorrow. Anti-seizure meds are needed after a brain trauma because the blood on the brain irritates the nerves and causes seizures. Jared will have to be on the meds for about three months, long enough for the swelling to go down.
Dr. Sharma came in around 8:00 and told the nurse to pull his NG tube tonight at midnight, and remove the central line now. Maybe Jared can get a little more comfortable and I can sleep a little more tonight, not having to stop him from pulling tubes out. I did get a solid four hours last night. It has only taken me two weeks to figure out how to sleep comfortably in a chair! Score, no sore hips tomorrow!
I have received many texts, calls, and articles to read since my post yesterday. Thank you, they have been a big help. I will be passing on info to the other family here that Lee mentioned. They too are frustrated with the lack of answers and information.
I felt guilty and sad yesterday when they stood at the end of the hall watching Jared sit up in a chair. I know they were happy for us, but my heart breaks for them. My prayers continue for them and their son.
I not only forgot the neurologists name but I even forgot Jared's name and who I was. In order to get into PICU, you have to call on a phone, state the patients name and who you are. When the nurse answered the phone, all I could say was uhhh! Lee quickly came to my rescue.
Thank you for your continued support, prayers and kind words.
We love all of you.
February 13th - Update
Dr. Ingaroma just informed us that tomorrow they will finally take the neck brace off, remove the NG tube, the central line and they will be removing the staples from his head. Interesting fact: the way that they will be removed is inside the MRI, it acts like a giant magnet that will pull them out.
Jared just read a giant get well card to us. Lee was making a joke using a line from a movie, Jared quickly picked up on it and finished the rest of the line and told us what movie it was from. It was hilarious!
Tomorrow we will meet with a social worker to set up rehab, rides, deal with insurance and finalize plans. Jared will have to be transported by ambulance, because he is still considered critical care.
We have decided that it would probably be better for Jared to be in a facility in Salt Lake. This way friends and family can visit more often, which we think will be therapeutic.
So we wanted to explain a little about Jared's situation:
*When a healthy person lies in bed without moving for five days, you will lose about 30% of your muscle mass.
*When you have a head trauma, are on meds, a ventilator and in a coma for the length of time Jared has been, he will have lost about 80% of his muscle mass. This will have to be recovered through long-term rehabilitation. Which means he will have to learn to walk again.
*He is still having a little trouble with short term memory, we are not sure if this will be permanent or is because his brain is still trying to adjust and re-file everything.
In about six weeks we will have a better idea of the long term effects. We are staying positive, but this is going to be a long road to recovery.
Here's my shout-out to the YW's groups, from the South Pointe and Tooele Wards! Thank you for your letters and testimonies. You are BeAutIfuL DaUghTeRs of our Heavenly Father!
I hope that I may become a better person because of this "character building experience." I am choosing not to use the word trial anymore.
I say my prayers multiple times a day thanking Heavenly Father for our blessings at this time and wonder if that is enough to show my appreciation and love. I think by becoming stronger, remaining faithful and helping to lift others will be my gift of gratitude.
Jared just read a giant get well card to us. Lee was making a joke using a line from a movie, Jared quickly picked up on it and finished the rest of the line and told us what movie it was from. It was hilarious!
Tomorrow we will meet with a social worker to set up rehab, rides, deal with insurance and finalize plans. Jared will have to be transported by ambulance, because he is still considered critical care.
We have decided that it would probably be better for Jared to be in a facility in Salt Lake. This way friends and family can visit more often, which we think will be therapeutic.
So we wanted to explain a little about Jared's situation:
*When a healthy person lies in bed without moving for five days, you will lose about 30% of your muscle mass.
*When you have a head trauma, are on meds, a ventilator and in a coma for the length of time Jared has been, he will have lost about 80% of his muscle mass. This will have to be recovered through long-term rehabilitation. Which means he will have to learn to walk again.
*He is still having a little trouble with short term memory, we are not sure if this will be permanent or is because his brain is still trying to adjust and re-file everything.
In about six weeks we will have a better idea of the long term effects. We are staying positive, but this is going to be a long road to recovery.
Here's my shout-out to the YW's groups, from the South Pointe and Tooele Wards! Thank you for your letters and testimonies. You are BeAutIfuL DaUghTeRs of our Heavenly Father!
I hope that I may become a better person because of this "character building experience." I am choosing not to use the word trial anymore.
I say my prayers multiple times a day thanking Heavenly Father for our blessings at this time and wonder if that is enough to show my appreciation and love. I think by becoming stronger, remaining faithful and helping to lift others will be my gift of gratitude.
Saturday, February 12, 2011
Giant Leap
I just watched Jared pull his left leg up, I was so excited!!! I grabbed it and was pushing it towards his body, he began pushing it back. WOW! Lee and I are ecstatic! I cannot believe the miracles that are happening.
Dr. Ingaroma told us Jared will probably be able to be moved to a facility early next week. Then we can start allowing visitors!
We are flying high right now!
After the darkest hour, the sun will shine!
Dr. Ingaroma told us Jared will probably be able to be moved to a facility early next week. Then we can start allowing visitors!
We are flying high right now!
After the darkest hour, the sun will shine!
February 12th - Update
Jared had a more restful night. He thought he was at Dairy Delight (a local burger place in in our hometown) the whole night. He kept telling me he needed to call his mom, she is probably worrying about me. He would get frustrated when I would explain where he was and call me a liar, and then he said I hate you, well, kind of hate you. I can't imagine how frustrating it is for him.
This morning he is calmer and slept for a solid 4 hours.
He was scheduled for an MRI this morning, the nurses told us to take a break and come back after 10:00. Jared wouldn't know we were away. That didn't last long when we got a call to come back, Jared was looking for us. The MRI was canceled until Monday because of an emergency. He has to have the test to see if they can take his neck brace off.
He was yelling "excuse me", when the nurse came in he asked where we were. He asked them to call me and he gave them my phone number. When we walked in the room he began crying and said "It's about time, you've been gone forever. Like 8 hours." It was sad but funny.
He ate some of his breakfast, he knows that hospital food is nasty! He was able to tell me that he is in the hospital. Good signs for today.
Lee and I are trying to make a decision for rehabilitation. Jared will need a facility that is 24/7. We are not sure what is the best option, Salt Lake or Vegas. I want to be near Lee, but I have more resource options (family, friends) in Salt Lake. We are going to research our choices and hopefully, through prayer, we will make a good choice.
One thing that is frustrating is not knowing what will happen next. I don't know why they can't give us an idea of what to expect. I wish I knew someone that could explain, from experience, what rehab is going to be like. I want to make an informed decision. Will my life be crazy by myself in Vegas?
This morning he is calmer and slept for a solid 4 hours.
He was scheduled for an MRI this morning, the nurses told us to take a break and come back after 10:00. Jared wouldn't know we were away. That didn't last long when we got a call to come back, Jared was looking for us. The MRI was canceled until Monday because of an emergency. He has to have the test to see if they can take his neck brace off.
He was yelling "excuse me", when the nurse came in he asked where we were. He asked them to call me and he gave them my phone number. When we walked in the room he began crying and said "It's about time, you've been gone forever. Like 8 hours." It was sad but funny.
He ate some of his breakfast, he knows that hospital food is nasty! He was able to tell me that he is in the hospital. Good signs for today.
Lee and I are trying to make a decision for rehabilitation. Jared will need a facility that is 24/7. We are not sure what is the best option, Salt Lake or Vegas. I want to be near Lee, but I have more resource options (family, friends) in Salt Lake. We are going to research our choices and hopefully, through prayer, we will make a good choice.
One thing that is frustrating is not knowing what will happen next. I don't know why they can't give us an idea of what to expect. I wish I knew someone that could explain, from experience, what rehab is going to be like. I want to make an informed decision. Will my life be crazy by myself in Vegas?
Friday, February 11, 2011
What happens in Vegas apparently stays in Vegas
This is from Lee. I just found out that the rehabilitation center we were hoping to place Jared in at St. George will not be a good fit for him. Michelle and I have talked about whether to bring him to SLC or leave him in Vegas. If we move him to SLC for rehab, it is more difficult for me to see him as often. Most likely he will end up at a Rehab facility named Desert Canyon in Vegas.
Jared is eating a bit more today, so hopefully he can get the dang feeding tube out of his nose tonight. We are also hopeful that he will get his neck brace off today.
We just received some cards and notes from members of the Tooele 14th Ward Relief Society and Young Women's group. Thank you so much for the kind words, prayers and support. We love and appreciate our Ward members (whether former - Tooele or current - St. George).
Jared is eating a bit more today, so hopefully he can get the dang feeding tube out of his nose tonight. We are also hopeful that he will get his neck brace off today.
We just received some cards and notes from members of the Tooele 14th Ward Relief Society and Young Women's group. Thank you so much for the kind words, prayers and support. We love and appreciate our Ward members (whether former - Tooele or current - St. George).
Long Day
This is from Lee. It's been an exhausting day. He is really delusional today. Jared will sleep and then wake up. When he wakes up, he wants to know where he is at. For two hours, he was really mad at me because he thought he was at "Dairy Delight" in Tooele. I told him he was in the hospital and he called me a liar. He has cried a lot. He keeps asking me to take him home. I've been helping with some of the more personal issues with Jared (helping him go to the bathroom, etc) and really struggle with this kind of stuff. Whatever nurses get paid, it's not enough. I'll admit it, I'm dog tired. Michelle will be here soon, after her 5 hours of sleep. She should win Mother of the Year.........
On the bright side, we're grateful to have these challenges with Jared. Just a few short days ago, we were hoping he'd open his eyes. The fact that we are dealing with the current challenges should make us grateful.
The kid in the room next to Jared's old room, still hasn't woke up yet. Our hearts ache for this family and we pray for them to have a miracle with their son.
On the bright side, we're grateful to have these challenges with Jared. Just a few short days ago, we were hoping he'd open his eyes. The fact that we are dealing with the current challenges should make us grateful.
The kid in the room next to Jared's old room, still hasn't woke up yet. Our hearts ache for this family and we pray for them to have a miracle with their son.
February 11th -Update
It was a fairly quiet night. Jared is not as emotional as yesterday, but now he is in the defiant stage. Typical teenager! He was ripping wires out last night and was yelling about how hot it was, and what a crappy hotel this is!!!
I'm wondering if the hospital gives discounts when you help out. Last night I learned how to plug in every wire that he pulled out.
He can tell time and count. This morning physical and occupational therapy came and got him up and out of bed. He has to wear a helmet when he is out of bed and the one they gave him was too big, when asked to lift his leg and touch the OT's hand, he said "I can't, everything is black." He also ate a little breakfast. Hopefully by tonight they will remove his NG tube from his nose that is feeding him.
This will be a slow process. I knew, but didn't get it, until they sat him up, he looked like a rag doll. We are still concerned about his left leg, he can feel you touching it, but he can't move it.
We watched a little bit of tv last night, he remembered the programs, even enough to tell me he hates icarly.
Off to bed for me. By the way, Lee did an amazing job yesterday. He is stronger than he thinks. I am grateful that he is here.
Love to all!
For those who are calling or texting me, I'm not ignoring you. I am just busy, busy, or sleeping. Hopefully we can get Jared back on a good sleeping schedule.
I'm wondering if the hospital gives discounts when you help out. Last night I learned how to plug in every wire that he pulled out.
He can tell time and count. This morning physical and occupational therapy came and got him up and out of bed. He has to wear a helmet when he is out of bed and the one they gave him was too big, when asked to lift his leg and touch the OT's hand, he said "I can't, everything is black." He also ate a little breakfast. Hopefully by tonight they will remove his NG tube from his nose that is feeding him.
This will be a slow process. I knew, but didn't get it, until they sat him up, he looked like a rag doll. We are still concerned about his left leg, he can feel you touching it, but he can't move it.
We watched a little bit of tv last night, he remembered the programs, even enough to tell me he hates icarly.
Off to bed for me. By the way, Lee did an amazing job yesterday. He is stronger than he thinks. I am grateful that he is here.
Love to all!
For those who are calling or texting me, I'm not ignoring you. I am just busy, busy, or sleeping. Hopefully we can get Jared back on a good sleeping schedule.
Thursday, February 10, 2011
Post from Lee - 5:30 PM
It's been a crazy day with Jared. He would go to sleep and then wake up and keep trying to get out of his bed. I must have explained to him at least 20 times why he was there and why he couldn't get out of bed. He is talking well and seems to understand what he is asked and responds accordingly. He has cried a lot. Mostly, I think out of frustration of not being able to move about. I think he still has some post operation/accident delusions. He asked me to take him outside to pee, because he didn't want to do it in front of anyone (his catheter had been removed earlier today). When I told him that we were in the hospital, he told me I was lying and that our front yard was behind the curtains. I pulled the curtains back and pointed to the nurses station. Jared was very disappointed as he just wanted some privacy. Although, I'm not certain that our front yard would have given him any! :)
One of the physical therapists came in and worked him over (moving his arms and legs and stretching them etc. He was able to get through that pretty well. We were able to get him moved to a room (#278) with a view (room with a window). At least now, he'll be able to understand the difference between night and day.
We also just had a visit from a guy who was fitting Jared with a "helmet." The guy actually had one that was perfect for Jared. It is made out of some kind of plastic covered foam and kind of looks like a hockey helmet. I'm sure Jared will hate it as he will have to wear it for two-three months. The surgeons will not replace the bone they removed from his skull until that time. I guess it takes quite a while for the brain to shrink back to size. Jared will have a big soft spot on the left side of his head. Thus the helmet (to protect him).
Michelle left some time around noon. I hope she can get some good sleep. I was actually able to do several work related items today. It felt very good.
It sounds like we'll be able to have Jared's rehabilitation stay in St. George. I talked to our insurance company and Dixie Regional (IHC owned) has a rehabilitation center that deals with brain injuries. We are grateful for this as we should be able to get our life somewhat back to normal (without the traveling) and Jared's friends will be able to visit him.
Thanks again to everyone for your prayers. We'd also like to thank those who have sent get well cards and wishes. We truly appreciate your kindness. There are many kids in here (PICU) that are not doing as well as Jared. Please keep them in your prayers also. I'm amazed by the many challenges each of these parents and their kids have to go through. When all is said and done, I believe we are and have been, very blessed.
Lee
One of the physical therapists came in and worked him over (moving his arms and legs and stretching them etc. He was able to get through that pretty well. We were able to get him moved to a room (#278) with a view (room with a window). At least now, he'll be able to understand the difference between night and day.
We also just had a visit from a guy who was fitting Jared with a "helmet." The guy actually had one that was perfect for Jared. It is made out of some kind of plastic covered foam and kind of looks like a hockey helmet. I'm sure Jared will hate it as he will have to wear it for two-three months. The surgeons will not replace the bone they removed from his skull until that time. I guess it takes quite a while for the brain to shrink back to size. Jared will have a big soft spot on the left side of his head. Thus the helmet (to protect him).
Michelle left some time around noon. I hope she can get some good sleep. I was actually able to do several work related items today. It felt very good.
It sounds like we'll be able to have Jared's rehabilitation stay in St. George. I talked to our insurance company and Dixie Regional (IHC owned) has a rehabilitation center that deals with brain injuries. We are grateful for this as we should be able to get our life somewhat back to normal (without the traveling) and Jared's friends will be able to visit him.
Thanks again to everyone for your prayers. We'd also like to thank those who have sent get well cards and wishes. We truly appreciate your kindness. There are many kids in here (PICU) that are not doing as well as Jared. Please keep them in your prayers also. I'm amazed by the many challenges each of these parents and their kids have to go through. When all is said and done, I believe we are and have been, very blessed.
Lee
February 10th - Morning Update
It was a quiet night, Jared was able to get some rest most of the night. He did a lot of talking in his sleep, which is normal for Jared.
Around 11:00 last night he woke me up talking and trying to move around. When I spoke to him from across the room he asked "who is there?" When I asked him if he knew who he was he replied "Jared, what, do you think I'm stupid." That is so Jared!
He's feeling quite overwhelmed and emotional this morning trying to understand everything. He told me that he just wanted to sleep, he didn't feel good, but he's not in any pain.
As he was trying to sleep, Lee was on the phone, Jared told me, "tell dad to shut-up, I'm trying to sleep."
Things are looking good. Jared will be in PICU for a while longer. Then we will make some decisions on a full time rehabilitation center. At that point, we can set up some time that his friends can come and visit! That would really cheer him up.
Around 11:00 last night he woke me up talking and trying to move around. When I spoke to him from across the room he asked "who is there?" When I asked him if he knew who he was he replied "Jared, what, do you think I'm stupid." That is so Jared!
He's feeling quite overwhelmed and emotional this morning trying to understand everything. He told me that he just wanted to sleep, he didn't feel good, but he's not in any pain.
As he was trying to sleep, Lee was on the phone, Jared told me, "tell dad to shut-up, I'm trying to sleep."
Things are looking good. Jared will be in PICU for a while longer. Then we will make some decisions on a full time rehabilitation center. At that point, we can set up some time that his friends can come and visit! That would really cheer him up.
Wednesday, February 9, 2011
February 9th - Update
Jared is resting comfortably, yawning tons and making good progress. He will be moved to another room in PICU tomorrow, one with a window to help him acclimate to day and night. They want to try and get him into a wheel chair and let him have ice cream, too!
Tonight he was getting aggravated, he doesn't want to be tied down. He started to yell at the nurse, "I need to shower." Lee told him we bought him some new deodorant, and Jared responded "I need a shower first, before axe" (deodorant).
What a ride! I thought I knew everything I needed to about brain trauma from the documentaries we watch, but they never explain the "awakening stages."
Earlier Jared recognized me but was still pretty groggy. Then this evening he was staring at me and all of a sudden he had a different look and he began mumbling words. You could say he literally "woke up, fighting". Jared began jerking his arm around, what I thought was a seizure, so I looked for the doctor who came in just as Jared started shouting. I realized quickly what he said and knew that he was punching me, he was remembering the sparring match.
I'm still not sure how I feel about all of that, everyone here thinks it was funny. I will let you know my opinion in a few days.
He couldn't remember who I was at this point. His brain, is just trying to "re-boot" and everything is really confusing. Later tonight he called my name, relief (again).
I think I'm ready to get of this emotional roller coaster!
I went back to get some sleep, I don't know how I even made it back. I had plans to do laundry, shower, clean our room, etc... I sat on the bed and I was out. I slept a whole two hours, showered and fell back to sleep for another hour. Holy Hannah it all caught up with me. Then I had to have another meltdown so I could rise to the challenge of the new night.
I'm sitting here in the quiet, I can't believe how loud all of the machines were, I'm glad (and grateful) they are gone. Jared is resting comfortably and he is even "sawing logs." Maybe it will be a quiet night. I just want my baby to be able to get some needed rest without being overly drugged.
Watching Jared go through so many emotions today was pretty hard.
Our bishop and his counselors came down to visit, it was very nice of them to come and give their support, we truly found a good ward to be in. Their wives all sent gifts, which I appreciate. I love the blanket that was sent, it's warmer than the one the hospital gave me to use, and feels more like a piece of home.
Here's my shout out to Jennae, Jill and Jennifer (and hubbies), thanks for the gifts and kind words of comfort. I love you!
I appreciate all of the comments that have been sent via text, blog, Facebook, etc... These have sustained me through a rough time.
Sunday, before Lee left for St. George, he gave me a blessing. In that blessing, he prayed that I would have the strength to withstand the challenges of this week. I know that I made it through last night strong, because of that blessing.
- Be strong and of a good courage; be not afraid, neither be thou dismayed: for the Lord thy God is with thee whithersoever thou goest. (Joshua 1:9) This is the scripture that has been on my mind all day and has given me comfort.
Now, for a funny! For those who know me well, you know that I tend to run into walls, a LoT! So, tonight I was going out to the car and I was walking between my car and the one parked next to me, when all of a sudden I felt massive pain in my knee. I had just hyperextended it and was kind of jerked back. I could't figure out what happened until I looked down and noticed the car next to me had his wheels turned outward, instead of straight. I ran right into the tire, so hard that I now have the tread marks on my khaki colored pants. Aaaarrrggghhh, only I could do something like that!!! LoL:). Going to rest while Jared is sleeping, good night to all.
Tonight he was getting aggravated, he doesn't want to be tied down. He started to yell at the nurse, "I need to shower." Lee told him we bought him some new deodorant, and Jared responded "I need a shower first, before axe" (deodorant).
What a ride! I thought I knew everything I needed to about brain trauma from the documentaries we watch, but they never explain the "awakening stages."
Earlier Jared recognized me but was still pretty groggy. Then this evening he was staring at me and all of a sudden he had a different look and he began mumbling words. You could say he literally "woke up, fighting". Jared began jerking his arm around, what I thought was a seizure, so I looked for the doctor who came in just as Jared started shouting. I realized quickly what he said and knew that he was punching me, he was remembering the sparring match.
I'm still not sure how I feel about all of that, everyone here thinks it was funny. I will let you know my opinion in a few days.
He couldn't remember who I was at this point. His brain, is just trying to "re-boot" and everything is really confusing. Later tonight he called my name, relief (again).
I think I'm ready to get of this emotional roller coaster!
I went back to get some sleep, I don't know how I even made it back. I had plans to do laundry, shower, clean our room, etc... I sat on the bed and I was out. I slept a whole two hours, showered and fell back to sleep for another hour. Holy Hannah it all caught up with me. Then I had to have another meltdown so I could rise to the challenge of the new night.
I'm sitting here in the quiet, I can't believe how loud all of the machines were, I'm glad (and grateful) they are gone. Jared is resting comfortably and he is even "sawing logs." Maybe it will be a quiet night. I just want my baby to be able to get some needed rest without being overly drugged.
Watching Jared go through so many emotions today was pretty hard.
Our bishop and his counselors came down to visit, it was very nice of them to come and give their support, we truly found a good ward to be in. Their wives all sent gifts, which I appreciate. I love the blanket that was sent, it's warmer than the one the hospital gave me to use, and feels more like a piece of home.
Here's my shout out to Jennae, Jill and Jennifer (and hubbies), thanks for the gifts and kind words of comfort. I love you!
I appreciate all of the comments that have been sent via text, blog, Facebook, etc... These have sustained me through a rough time.
Sunday, before Lee left for St. George, he gave me a blessing. In that blessing, he prayed that I would have the strength to withstand the challenges of this week. I know that I made it through last night strong, because of that blessing.
- Be strong and of a good courage; be not afraid, neither be thou dismayed: for the Lord thy God is with thee whithersoever thou goest. (Joshua 1:9) This is the scripture that has been on my mind all day and has given me comfort.
Now, for a funny! For those who know me well, you know that I tend to run into walls, a LoT! So, tonight I was going out to the car and I was walking between my car and the one parked next to me, when all of a sudden I felt massive pain in my knee. I had just hyperextended it and was kind of jerked back. I could't figure out what happened until I looked down and noticed the car next to me had his wheels turned outward, instead of straight. I ran right into the tire, so hard that I now have the tread marks on my khaki colored pants. Aaaarrrggghhh, only I could do something like that!!! LoL:). Going to rest while Jared is sleeping, good night to all.
Latest Update - From Lee
Jared has been very active since being taken off the ventilator. The only coherent thing he said was when he started punching the air and said that he was going to kick so and so's butt (the kid he had been sparring with). So apparently, he has a memory of the last few minutes before his accident.
Jared is very, very confused. When he looks at you, you can tell there is a disconnect. He can follow simple commands, but the meds he has been taking and the brain injury make it impossible for him right now to be clear about anything. The nurses and doctors tell us that this is normal. Michelle and I are very worried about Jared's left leg. He seems to have little functionality with it at all. He did pull both of his legs up yesterday, but nothing since. He has kicked several times (hard kicks) with his right leg. Nothing with the left. His arms appear to be okay. Hopefully, this will be a rehab item that can be corrected. The most important thing is him having his mental capacities. We are optimistic that he will be okay.
Michelle finally went back to the RMcD House around 12:00 noon. I think she is running on adrenaline as she has had little sleep in the past 24 hours. She was up with Jared all night when he was throwing up.
Superwoman just called me at 4:30 pm. She is taking a bath and then coming back to the hospital. As I said yesterday, she is one tough gal.
The Andrus family has been wonderful to us throughout this whole ordeal. They allowed me all the time I needed last week and have allowed me whatever I need this week. I brought my laptop and cell phone with me and am trying to work as best I can, but it's not the same as being back at the office. We're grateful to Jim, Mary and Jimmy Andrus. They are great people that would literally give you the shirts off their backs if you were in trouble. We'll be forever grateful for their kindness and concern for Jared and us.
Thanks again for the prayers.
Thanks again for your prayers.
Jared is very, very confused. When he looks at you, you can tell there is a disconnect. He can follow simple commands, but the meds he has been taking and the brain injury make it impossible for him right now to be clear about anything. The nurses and doctors tell us that this is normal. Michelle and I are very worried about Jared's left leg. He seems to have little functionality with it at all. He did pull both of his legs up yesterday, but nothing since. He has kicked several times (hard kicks) with his right leg. Nothing with the left. His arms appear to be okay. Hopefully, this will be a rehab item that can be corrected. The most important thing is him having his mental capacities. We are optimistic that he will be okay.
Michelle finally went back to the RMcD House around 12:00 noon. I think she is running on adrenaline as she has had little sleep in the past 24 hours. She was up with Jared all night when he was throwing up.
Superwoman just called me at 4:30 pm. She is taking a bath and then coming back to the hospital. As I said yesterday, she is one tough gal.
The Andrus family has been wonderful to us throughout this whole ordeal. They allowed me all the time I needed last week and have allowed me whatever I need this week. I brought my laptop and cell phone with me and am trying to work as best I can, but it's not the same as being back at the office. We're grateful to Jim, Mary and Jimmy Andrus. They are great people that would literally give you the shirts off their backs if you were in trouble. We'll be forever grateful for their kindness and concern for Jared and us.
Thanks again for the prayers.
Thanks again for your prayers.
Subscribe to:
Posts (Atom)